Lencsi was born in 2016 as a completely healthy baby. His motor development had always been slower, but at the age of one and a half his development stopped and reversed. Genetic testing showed he had SMA type 2.
The family was completely shocked to hear the shocking news, but since then they have been fighting the disease together, armed with all the knowledge they have, giving their daughter the best they can, whether it's aids or therapy that can help her condition.
He has not learned to stand or walk, he uses a wheelchair and needs help with many daily activities. Due to muscle weakness and a lot of sitting, he has developed scoliosis. Because of this, he has to have regular back surgeries to replace/stretch the implant. His lungs, and therefore his breathing muscles, also need to be developed. For this reason, he also uses a night breathing support device and a cough suppressant.
She is already eight years old, an open-minded girl and an excellent student. She is extremely interested in the animal world and astronomy, but she has also won gold medals in drawing and swimming.
Please support Lencsi so that she can receive as much movement development as possible based on her individual development plan!

