{"version":"1.0","provider_name":"One Step More Foundation","provider_url":"https:\/\/egylepesseltobb.hu\/en","author_name":"mag","author_url":"https:\/\/egylepesseltobb.hu\/en\/author\/mag\/","title":"P. Petra, Tam\u00e1s \u00e9s csal\u00e1dja - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny","type":"rich","width":600,"height":338,"html":"<blockquote class=\"wp-embedded-content\" data-secret=\"Jk7Ru886ga\"><a href=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/p-petra-tamas-es-csaladja\/\">P. Petra, Tam\u00e1s and family<\/a><\/blockquote><iframe sandbox=\"allow-scripts\" security=\"restricted\" src=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/p-petra-tamas-es-csaladja\/embed\/#?secret=Jk7Ru886ga\" width=\"600\" height=\"338\" title=\"&#8220;P. Petra, Tam\u00e1s \u00e9s csal\u00e1dja&#8221; &#8212; Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" data-secret=\"Jk7Ru886ga\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\" class=\"wp-embedded-content\"><\/iframe><script>\n\/*! This file is auto-generated *\/\n!function(d,l){\"use strict\";l.querySelector&&d.addEventListener&&\"undefined\"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!\/[^a-zA-Z0-9]\/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret=\"'+t.secret+'\"]'),o=l.querySelectorAll('blockquote[data-secret=\"'+t.secret+'\"]'),c=new RegExp(\"^https?:$\",\"i\"),i=0;i<o.length;i++)o[i].style.display=\"none\";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute(\"style\"),\"height\"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):\"link\"===t.message&&(r=new URL(s.getAttribute(\"src\")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener(\"message\",d.wp.receiveEmbedMessage,!1),l.addEventListener(\"DOMContentLoaded\",function(){for(var e,t,s=l.querySelectorAll(\"iframe.wp-embedded-content\"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute(\"data-secret\"))||(t=Math.random().toString(36).substring(2,12),e.src+=\"#?secret=\"+t,e.setAttribute(\"data-secret\",t)),e.contentWindow.postMessage({message:\"ready\",secret:t},\"*\")},!1)))}(window,document);\n\/\/# sourceURL=https:\/\/egylepesseltobb.hu\/wp-includes\/js\/wp-embed.min.js\n<\/script>","thumbnail_url":"https:\/\/egylepesseltobb.hu\/wp-content\/uploads\/2025\/07\/Egylepesseltobb-csaladok-2.jpg","thumbnail_width":2500,"thumbnail_height":1800,"description":"Pihokker csal\u00e1d k\u00e9t, tart\u00f3san beteg \u00e9s saj\u00e1tos nevel\u00e9si ig\u00e9ny\u0171 kisgyermeket nevel. A csal\u00e1d \u00e9let\u00e9t nap mint nap meghat\u00e1rozza a folyamatos fejleszt\u00e9sek \u00e9s ter\u00e1pi\u00e1k szervez\u00e9se, biztos\u00edt\u00e1sa \u00e9s finansz\u00edroz\u00e1sa. Kisebbik gyermek\u00fck, a most 2,5 \u00e9ves Tam\u00e1s, a 35. h\u00e9tre sz\u00fcletett meg, 6\/8-as Apgar-\u00e9rt\u00e9kkel, CTG-anom\u00e1lia miatt. \u00c9let\u00e9nek els\u0151 heteit a NIC\/PIC oszt\u00e1lyon t\u00f6lt\u00f6tte. Mozg\u00e1sfejl\u0151d\u00e9se m\u00e1r kor\u00e1n elmaradt kort\u00e1rsait\u00f3l, \u00e9s generaliz\u00e1lt hipot\u00f3ni\u00e1t diagnosztiz\u00e1ltak n\u00e1la. 2024 november\u00e9ben a genetikai vizsg\u00e1lat igazolta, hogy Tam\u00e1s a Charcot\u2013Marie-Tooth (CMT 3) betegs\u00e9g csecsem\u0151kori indul\u00e1si form\u00e1j\u00e1ban \u00e9rintett, ami a mozg\u00e1sprobl\u00e9m\u00e1i m\u00f6g\u00f6tt \u00e1ll. Jelenleg stabilan meg tud \u00fclni, szab\u00e1lyosan m\u00e1szik, b\u00fatorok mellett kapaszkodva fel\u00e1ll, \u00e9s gurul\u00f3 j\u00e1r\u00f3keret seg\u00edts\u00e9g\u00e9vel, valamint AFO-val m\u00e1r egyre \u00fcgyesebben k\u00f6zlekedik a fejleszt\u00e9sek sor\u00e1n \u2013 de \u00f6n\u00e1ll\u00f3an m\u00e9g nem tud j\u00e1rni."}