{"id":1929,"date":"2025-01-22T09:11:55","date_gmt":"2025-01-22T09:11:55","guid":{"rendered":"https:\/\/egylepesseltobb.hu\/?p=1929"},"modified":"2025-12-08T09:47:57","modified_gmt":"2025-12-08T09:47:57","slug":"a-krisztian-es-csaladja","status":"publish","type":"post","link":"https:\/\/egylepesseltobb.hu\/en\/2025\/01\/22\/a-krisztian-es-csaladja\/","title":{"rendered":"A. Kriszti\u00e1n and his family"},"content":{"rendered":"<p class=\"lead\">Kriszti\u00e1n was diagnosed with Duchenne muscular dystrophy at the age of seven and a half. I could already see that something was wrong when I was 5. He couldn&#039;t walk up stairs, squat down, climb, and could barely walk a few meters on his own.<br \/>I took him to the local doctor, but they said he had clubfoot and a muscle strain! They took two years off our lives.<\/p>\n<p>Then I got bored and said: send me to Budapest. He wrote me a referral and I took him to the Heimp\u00e1l Hospital immediately. <br \/>There we got the result! A world crumbled inside me. I have been raising him alone since he was born because his father abandoned us. Sadly he is no longer alive! Kriszti\u00e1n is a modest but well-balanced child, full of life, always smiling. Three years ago he underwent a 9-hour spinal surgery, 36 screws holding his spine in place. Thank God everything went well. He had a 95 degree spinal deformity.<\/p>\n<p>He's suppressed his lungs, his stomach, and if I hadn't taken the surgery, he wouldn't be with me. We live in a sublet, in modest circumstances. I am on Gyod with him because he needs 24 hour care! We go a lot to the children's hospice in Buda. He sleeps with a ventilator, sometimes I have to put him on it during the day. He also has a cough machine because he can't cough. We would be grateful if you could help us to give him a little better life...thank you very much.<\/p>","protected":false},"excerpt":{"rendered":"<p>Kriszti\u00e1n was diagnosed with Duchenne muscular dystrophy at the age of seven and a half. I could already see that something was wrong when I was 5. He couldn&#039;t walk up stairs, squat down, climb, and could barely walk a few meters on his own.<br \/>\nI took him to the local doctor, but they said he had clubfoot and a muscle strain! They took two years off our lives.<\/p>","protected":false},"author":1,"featured_media":1932,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-1929","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>A. 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Hi\u00e1ba vittem a k\u00f6rzeti orvoshoz, azt mondt\u00e1k l\u00fadtalpas meg izomletapad\u00e1sa van! 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