{"id":1937,"date":"2025-12-08T09:45:14","date_gmt":"2025-12-08T09:45:14","guid":{"rendered":"https:\/\/egylepesseltobb.hu\/?p=1937"},"modified":"2026-02-11T09:59:04","modified_gmt":"2026-02-11T09:59:04","slug":"adin-es-csaladja","status":"publish","type":"post","link":"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/adin-es-csaladja\/","title":{"rendered":"Adin and his family"},"content":{"rendered":"<div>\u00c1din suffers from Duchenne muscular dystrophy. His parents received the results of the genetic test on 17 December 2022, when the diagnosis was made.<\/div>\n<div>\u00a0<\/div>\n<div>Duchenne muscular dystrophy is a congenital, hereditary disease involving the gradual destruction of muscle cells. Over time, the muscles are replaced by fatty and connective tissue that is incapable of muscle function, leaving the body increasingly weakened and eventually unable to move independently or support itself.<\/div>\n<div>\u00a0<\/div>\n<div>In 2024, Adin received gene therapy, which gave him a huge opportunity for a cure. In the first year after treatment, he made a lot of progress: he became much stronger and it was a pleasure to see how much progress he had made.<\/div>\n<div>\u00a0<\/div>\n<div>Although gene therapy is not a permanent solution, it would be a huge achievement if this condition could be maintained in the longer term.<\/div>\n<div>Despite all efforts, his blood test results show high levels of inflammation and muscle destruction is currently higher than they feel is safe. Although there is no outward sign of deterioration for the time being, the fear of a sudden deterioration is also a source of hope. They will soon travel to Dubai to see their doctor, where they will discuss the possibility of steroid treatment. A new drug, costing 7 million forints a month, has also been suggested that could also slow down the disease. They want to give Adin every possible chance.<\/div>\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>\u00c1din lives with Duchenne muscular dystrophy, a severe hereditary disease that causes a gradual weakening of the muscles. The gene therapy he received in 2024 has helped, but further treatments and huge financial resources are needed to maintain the condition so that \u00c1din can continue to have a chance to thrive.<\/p>","protected":false},"author":1,"featured_media":1939,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-1937","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00c1din \u00e9s csal\u00e1dja - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/adin-es-csaladja\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00c1din \u00e9s csal\u00e1dja - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"og:description\" content=\"\u00c1din Duchenne-f\u00e9le izomdisztr\u00f3fi\u00e1val \u00e9l, egy s\u00falyos, \u00f6r\u00f6kletes betegs\u00e9ggel, amely az izmok fokozatos gyeng\u00fcl\u00e9s\u00e9vel j\u00e1r. A 2024-ben kapott g\u00e9nter\u00e1pia sokat seg\u00edtett, de az \u00e1llapot meg\u0151rz\u00e9s\u00e9hez tov\u00e1bbi kezel\u00e9sekre \u00e9s hatalmas anyagi er\u0151forr\u00e1sokra van sz\u00fcks\u00e9g, hogy \u00c1din tov\u00e1bbra is es\u00e9lyt kapjon a fejl\u0151d\u00e9sre.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/adin-es-csaladja\/\" \/>\n<meta property=\"og:site_name\" content=\"Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"article:published_time\" content=\"2025-12-08T09:45:14+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-02-11T09:59:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/egylepesseltobb.hu\/wp-content\/uploads\/2025\/01\/Fekvo-4.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1250\" \/>\n\t<meta property=\"og:image:height\" content=\"900\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"mag\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"mag\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/adin-es-csaladja\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/adin-es-csaladja\\\/\"},\"author\":{\"name\":\"mag\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/#\\\/schema\\\/person\\\/44617b6e78860a248a86a71696f68313\"},\"headline\":\"\u00c1din \u00e9s csal\u00e1dja\",\"datePublished\":\"2025-12-08T09:45:14+00:00\",\"dateModified\":\"2026-02-11T09:59:04+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/adin-es-csaladja\\\/\"},\"wordCount\":292,\"image\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/adin-es-csaladja\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/egylepesseltobb.hu\\\/wp-content\\\/uploads\\\/2025\\\/01\\\/Fekvo-4.png\",\"articleSection\":[\"\u00d6r\u00f6kbefogadott csal\u00e1dok\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/adin-es-csaladja\\\/\",\"url\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/adin-es-csaladja\\\/\",\"name\":\"\u00c1din \u00e9s csal\u00e1dja - 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