Gerg\u0151 is a kind-hearted little boy with a difficult life.<\/p>\n
He was born prematurely at 34 weeks of gestation by cesarean section. From the very beginning, he struggled with many difficulties (feeding, movement, etc.), and because of these, he underwent various tests in several hospitals until he was 4 months old. Within the framework of such tests, he was referred to the University of P\u00e9cs for genetic testing, where he received the diagnosis of his disease after waiting for almost 3 years. He lives with 2 congenital, rare genetic diseases, which are accompanied by microcephaly (a brain developmental disorder - affecting speech, vision, and the movement center), metabolic and hormonal disorders.<\/p>\n
This disease is unique to Hungary, and doctors have only found 5 cases in the world in foreign literature, but these two diseases have not appeared together there either.<\/p>\n
He is a non-speaking, moderately intellectually, visually, and physically disabled boy with ADHD. He still teaches everyone about unconditional love on a daily basis. Although he is a huge fighter, like all his fellow squeamish children (he learned to walk and eat over several years, so we were able to avoid PEG), unfortunately he will not be able to live an independent life, he is a little nest child.
Most of the time he is smiling and cheerful, but there are worse periods when he vomits more and his nose bleeds often.
He needs help 24 hours a day, which requires a lot of sacrifices on the part of the family, especially during bad times.
He does nothing independently except walk. He is far behind the average for his age, both physically and mentally.<\/p>\n
From the age of 4 months until kindergarten (until 3 years ago), we went to the Tunyogi Erzs\u00e9bet Healing Playhouse for complex early development, to D\u00e9v\u00e9ny tournaments twice a week, and to TSMT development. All of this was privately financed.
Krisztina has been raising her 3 children as a single mother for 4 years, and unfortunately, she is no longer financially able to provide them with the above-mentioned developments. She works 4 hours a day with her young son, and this does not cover the developments.<\/p>\n
Gerg\u0151's mother told him about her greatest wish:<\/p>\n
I really hope that since he will never speak, he will learn to communicate in some other way. Unfortunately, he cannot even respond with yes or no to basic questions (e.g., "Does it hurt?"). We always have to figure everything out about him.
Regular individual somatopedagogical development would improve his condition, and I would also like to take Gerg\u0151 to horse or dog therapy, because he really loves animals and it would also have a good effect on his ADHD.
I would like him to be able to do certain things on his own over time (eating, toileting, communicating, cleaning his room) so that he can live a slightly more self-sufficient life. His current condition, due to his illness, results in a very vulnerable situation.
It would be nice to know that even if I'm gone, she'll still be in a good place, loving and safe.<\/p>\n
Let's help Gerg\u0151 and his family together so that their dream can come true and this wonderful little boy can receive all the development he needs!<\/p>\n
<\/p>","protected":false},"excerpt":{"rendered":"
He was born prematurely at 34 weeks of gestation by cesarean section. From the very beginning, he struggled with many difficulties (feeding, movement, etc.), and because of these, he underwent various tests in several hospitals until he was 4 months old. Within the framework of such tests, he was referred to the University of P\u00e9cs for genetic testing, where he received the diagnosis of his disease after waiting for almost 3 years. He lives with 2 congenital, rare genetic diseases, which are accompanied by microcephaly (a brain developmental disorder - affecting speech, vision, and the movement center), metabolic and hormonal disorders. <\/p>","protected":false},"author":1,"featured_media":2096,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-2093","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"\n