{"id":2180,"date":"2025-12-08T09:45:13","date_gmt":"2025-12-08T09:45:13","guid":{"rendered":"https:\/\/egylepesseltobb.hu\/?p=2180"},"modified":"2025-12-08T09:45:13","modified_gmt":"2025-12-08T09:45:13","slug":"m-kiara-es-csaladja","status":"publish","type":"post","link":"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/m-kiara-es-csaladja\/","title":{"rendered":"M. Kiara and her family"},"content":{"rendered":"<p>Kiara&#039;s struggle began in her mother&#039;s womb. At the 18-week ultrasound, she was diagnosed with aortic stenosis. After the diagnosis, they were taken to Budapest&#039;s Szent J\u00e1nos Hospital, where the cardiologist professor told the parents what to expect after the examination. \u2013 50-50%, that there could be something wrong with her, but it will only be revealed at birth.<\/p>\n<p>The tests continued with a placental biopsy to screen for the most serious genetic diseases. M\u00f3nika was given great news after the test: she was carrying a completely healthy baby girl. Kiara was born by scheduled cesarean section and her heart was working properly. After the tests, they were discharged from the hospital and they could finally go home. The baby girl developed completely normally until she was 3 months old.<\/p>\n<p>One day, like someone who can&#039;t see or hear, I clapped my hands, showed him toys, made noise, and he didn&#039;t react. He didn&#039;t like to be on his stomach, his posture wasn&#039;t right, he didn&#039;t lift his head up, and his neck was crooked. That same evening, we took him to the local hospital, where the night doctor examined him and confirmed that his pupils really weren&#039;t reacting to light the way they should, his mother told us.<br \/>Basic examinations began at the local hospital, but further examinations are only possible in specialized hospitals (MRI, etc.). The examinations continued (Blood tests, skull ultrasound, heart ultrasound, neurological examinations, reflexes, etc. Several doctors checked how responsive his eyes were, pupil dilation, ophthalmology, and countless other examinations).<\/p>\n<p>After the tests, they were given an appointment for a genetic test in a few months. \u2013 Thin upper lip, smaller eye slit, eyes set far apart, ears set lower, higher palate. The final report listed how many places the little girl still needed to be taken. On the advice of the developers and other mothers, they visited a specialist in Deven, who determined that Kiara was hypotonic.<br \/>The next examination was neurology, where the MRI result suggested a brain developmental disorder, but since no pathological changes were visible, this result was also negative. The parents were advised to undergo improvements. They tried every improvement, they went through many painful examinations, but it ended with a negative result. According to the neurologist, the detection of neurological diseases is often a needle in a haystack. The parents received permission to support a full genetic examination. They have been waiting for a diagnosis for two years.<br \/>Kiara is now 5 years old, a tiny miracle who will show the world and all the doctors that nothing is impossible. Everything is possible, you just have to want it!<br \/>She&#039;s always smiling, kind to everyone, gymnasts and developers love her, they just call her cute. A real little love ball.<\/p>\n<p>He has incredible willpower and despite his illness, he has a lot of strength.<\/p>\n<p>Let&#039;s help Kiara and her family continue to fight and support their daughter so that she can once again live a full life and play with her peers.<\/p>","protected":false},"excerpt":{"rendered":"<p>Kiara&#039;s struggle began in her mother&#039;s womb. At the 18-week ultrasound, she was diagnosed with aortic stenosis. After the diagnosis, they were taken to Budapest&#039;s Szent J\u00e1nos Hospital, where the cardiologist professor told the parents what to expect after the examination. \u2013 50-50%, that there could be something wrong with her, but it will only be revealed at birth.<br \/>\nThe tests continued with a placental biopsy to screen for the most serious genetic diseases. M\u00f3nika was given great news after the test: she was carrying a completely healthy baby girl. Kiara was born by scheduled cesarean section and her heart was working properly. After the tests, they were discharged from the hospital and they could finally go home. The baby girl developed completely normally until she was 3 months old. <\/p>","protected":false},"author":1,"featured_media":2183,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-2180","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>M. Kiara \u00e9s csal\u00e1dja - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/m-kiara-es-csaladja\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"M. Kiara \u00e9s csal\u00e1dja - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"og:description\" content=\"Kiara k\u00fczdelme \u00e9desanyja pocakj\u00e1ban kezd\u0151d\u00f6tt. A 18 hetes ultrahang vizsg\u00e1laton aorta sz\u0171k\u00fcletet diagnosztiz\u00e1ltak n\u00e1la. A diagn\u00f3zis ut\u00e1n a Budapesti Szent J\u00e1nos k\u00f3rh\u00e1zba ker\u00fcltek, ahol a kardiol\u00f3gus professzor asszony, a vizsg\u00e1lat ut\u00e1n elmondta mire is sz\u00e1m\u00edthatnak a sz\u00fcl\u0151k. - 50-50%, hogy lehet vele baj, de csak sz\u00fclet\u00e9skor der\u00fcl ki. A vizsg\u00e1latok m\u00e9hlep\u00e9ny biopszi\u00e1val folytat\u00f3dtak, hogy ki sz\u0171rhessek a legs\u00falyosabb genetikai betegs\u00e9geket. M\u00f3nik\u00e1val hatalmas \u00f6r\u00f6mh\u00edrt k\u00f6z\u00f6ltek a vizsg\u00e1lat ut\u00e1n egy teljesen eg\u00e9szs\u00e9ges kisl\u00e1nyt hord a szive alatt. Programozott cs\u00e1sz\u00e1rral sz\u00fcletett Kiara \u00e9s a szivecsk\u00e9je rendesen dolgozott. A vizsg\u00e1latok ut\u00e1n hazaengedt\u00e9k \u0151ket a k\u00f3rh\u00e1zb\u00f3l \u00e9s v\u00e9gre otthon lehettek. 3 h\u00f3napos kor\u00e1ig teljesen rendben fejl\u0151d\u00f6tt a kisl\u00e1ny.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/m-kiara-es-csaladja\/\" \/>\n<meta property=\"og:site_name\" content=\"Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"article:published_time\" content=\"2025-12-08T09:45:13+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/egylepesseltobb.hu\/wp-content\/uploads\/2025\/01\/Fekvo-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1250\" \/>\n\t<meta property=\"og:image:height\" content=\"900\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"mag\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"mag\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-kiara-es-csaladja\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-kiara-es-csaladja\\\/\"},\"author\":{\"name\":\"mag\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/#\\\/schema\\\/person\\\/44617b6e78860a248a86a71696f68313\"},\"headline\":\"M. 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