In 2020, Levi was diagnosed with Duchenne muscular atrophy, then considered an incurable disease. However, in 2023, a new gene therapy, Elevidys, was developed that could significantly slow the progression of the disease. It's a treatment that we would like Levi to have, but it costs US$2.9 million.
The family also faces other ongoing expenses, as Levi has been on a steroid ordered from Italy since the age of 4, which he will need to take for the rest of his life. He also needs constant development and exercise.
Together, let's help Levi's family so that he can get the treatment he needs and continue to thrive!<\/p>","protected":false},"excerpt":{"rendered":"
In 2020, Levi was diagnosed with Duchenne muscular atrophy, then considered an incurable disease. However, in 2023, a new gene therapy, Elevidys, was developed that could significantly slow the progression of the disease. It's a treatment that we would like Levi to have, but it costs US$2.9 million.<\/p>","protected":false},"author":1,"featured_media":2627,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-2624","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"\n