{"id":2845,"date":"2025-12-08T09:45:12","date_gmt":"2025-12-08T09:45:12","guid":{"rendered":"https:\/\/egylepesseltobb.hu\/?p=2845"},"modified":"2025-12-08T09:45:12","modified_gmt":"2025-12-08T09:45:12","slug":"m-adam-es-csaladja","status":"publish","type":"post","link":"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/m-adam-es-csaladja\/","title":{"rendered":"Adam M. and his family"},"content":{"rendered":"

Adam was born in August 2015 in Tisza\u00fajlak, Transcarpathia. In the first three years of his life he developed nicely, without any problems, everything was according to his age.<\/p>\n

But in 2019, just before her fourth birthday, she had unexpected difficulties: after a mild cold, her parents noticed that she was having trouble with her stairs. Genetic tests revealed a shocking result - Adam was found to suffer from a rare, serious genetic disorder, Duchenne muscular dystrophy, which was thought to be incurable at the time.<\/p>\n

The family moved permanently to Hungary in 2021 to provide better care and opportunities for Adam. At present, the boy is still ambulatory and self-sufficient, but he can no longer run and needs help climbing stairs and getting up from the ground.<\/p>\n

His only chance of stopping the disease is Elevidys gene therapy, which can slow down and even stop muscle atrophy, thus preserving Adam's current condition. The treatment is crucial because dead muscle tissue can no longer regenerate.<\/p>\n

The family is working hard to get Adam the life-saving treatment he needs - but they need support.
Let's help Adam together in the hope of a fuller life!<\/p>","protected":false},"excerpt":{"rendered":"

Adam was born in August 2015 in Tisza\u00fajlak, Transcarpathia. In the first three years of his life he developed nicely, without any problems, everything was according to his age.
\nBut in 2019, just before her fourth birthday, she had unexpected difficulties: after a mild cold, her parents noticed that she was having trouble with her stairs. Genetic tests revealed a shocking result - Adam was found to suffer from a rare, serious genetic disorder, Duchenne muscular dystrophy, which was thought to be incurable at the time.<\/p>","protected":false},"author":1,"featured_media":2848,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-2845","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"\nM. \u00c1d\u00e1m \u00e9s csal\u00e1dja - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/m-adam-es-csaladja\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"M. \u00c1d\u00e1m \u00e9s csal\u00e1dja - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"og:description\" content=\"\u00c1d\u00e1m 2015 augusztus\u00e1ban sz\u00fcletett Tisza\u00fajlakon, K\u00e1rp\u00e1talj\u00e1n. \u00c9lete els\u0151 h\u00e1rom \u00e9v\u00e9ben sz\u00e9pen, probl\u00e9mamentesen fejl\u0151d\u00f6tt, minden a kor\u00e1nak megfelel\u0151en alakult. 2019-ben, negyedik sz\u00fclet\u00e9snapja el\u0151tt azonban v\u00e1ratlan neh\u00e9zs\u00e9gek jelentkeztek: egy enyhe megf\u00e1z\u00e1s ut\u00e1n sz\u00fclei \u00e9szrevett\u00e9k, hogy gondja van a l\u00e9pcs\u0151z\u00e9ssel. A genetikai vizsg\u00e1latok megd\u00f6bbent\u0151 eredm\u00e9nyt hoztak \u2013 kider\u00fclt, hogy \u00c1d\u00e1m egy ritka, s\u00falyos, \u00e9s akkor m\u00e9g gy\u00f3gy\u00edthatatlannak tartott genetikai betegs\u00e9gben, a Duchenne-f\u00e9le izomdisztr\u00f3fi\u00e1ban szenved.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/08\/m-adam-es-csaladja\/\" \/>\n<meta property=\"og:site_name\" content=\"Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"article:published_time\" content=\"2025-12-08T09:45:12+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/egylepesseltobb.hu\/wp-content\/uploads\/2025\/05\/Egylepesseltobb-csaladok-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2500\" \/>\n\t<meta property=\"og:image:height\" content=\"1800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"mag\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"mag\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-adam-es-csaladja\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-adam-es-csaladja\\\/\"},\"author\":{\"name\":\"mag\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/#\\\/schema\\\/person\\\/44617b6e78860a248a86a71696f68313\"},\"headline\":\"M. \u00c1d\u00e1m \u00e9s csal\u00e1dja\",\"datePublished\":\"2025-12-08T09:45:12+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-adam-es-csaladja\\\/\"},\"wordCount\":269,\"image\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-adam-es-csaladja\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/egylepesseltobb.hu\\\/wp-content\\\/uploads\\\/2025\\\/05\\\/Egylepesseltobb-csaladok-2.jpg\",\"articleSection\":[\"\u00d6r\u00f6kbefogadott csal\u00e1dok\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-adam-es-csaladja\\\/\",\"url\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/08\\\/m-adam-es-csaladja\\\/\",\"name\":\"M. \u00c1d\u00e1m \u00e9s csal\u00e1dja - 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