{"id":5465,"date":"2025-12-09T12:33:00","date_gmt":"2025-12-09T12:33:00","guid":{"rendered":"https:\/\/egylepesseltobb.hu\/?p=5465"},"modified":"2025-12-11T16:02:52","modified_gmt":"2025-12-11T16:02:52","slug":"rezmuves-csalad-2","status":"publish","type":"post","link":"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/09\/rezmuves-csalad-2\/","title":{"rendered":"Coppersmith family"},"content":{"rendered":"In a small village in Szabolcs County, there is a family of five where the parents raise three seriously ill boys with love, perseverance and dignity. Although their lives are filled with medical examinations, surgeries, rehabilitation and financial difficulties,\ntheir home is always filled with solidarity and the belief that together they can overcome any obstacle. All three boys were born apparently healthy, but it soon became clear that they would have to contend with serious problems. The youngest child was diagnosed with cataracts and glaucoma immediately after birth. In the case of the two older brothers, an abnormal glint in their eyes was noticed while bathing them, which was later also diagnosed as cataracts. The family travelled to Budapest for months for eye examinations and operations. By the time these treatments were completed, another difficulty arose: the boys' motor skills were not developing properly. After rehabilitation and orthopaedic examinations, polyneuropathy and Achilles tendon shortening were diagnosed in all three children. After many years of therapy, the family finally received the most difficult news at the children's clinic in the capital: all three boys had been diagnosed with a genetic, incurable and, unfortunately, fatal disease\ndisease of genetic origin, incurable and unfortunately fatal. The diagnosis: Marinescu-Sj\u00f6gren syndrome. Since then, the family has been undergoing continuous check-ups, physiotherapy, ophthalmological and orthopaedic examinations. Despite the surgeries, the boys' eyesight is rapidly deteriorating, and they now have very poor vision. This is accompanied by a continuous deterioration in their mobility and general condition. Although their daily lives are fraught with difficulties, the boys remain true individuals, full of dreams and desires. The eldest boy, Dominik, is intelligent and inquisitive, and loves to discuss current affairs. He takes medication for his health condition, and his greatest desire is to have a smartwatch that accurately measures his blood pressure and condition. Leon\u00e1rd, the middle son, loves to listen to and play music on his phone, which is now outdated and slow. The youngest, Mikike, is a real musical talent: his long-held dream is to have a synthesiser on which he can play anything. He says he would like to have a birthday party where he can play music. However, the most difficult moments for the family do not come in hospitals,\nbut when the boys, fully aware of their condition, ask what will happen to them when their parents are no longer there for them. These questions leave deep wounds, but the parents gather all their strength to restore their children's hope.\nFor them, every smile, every hug and every word spoken with love gives them new strength to carry on. Despite the daily struggles, they believe that help is available and that their children's dreams, however small, can come true.\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>A family of five lives in a small village in Szabolcs County, where the parents raise three seriously ill boys with love, perseverance and dignity. Although their lives are filled with medical examinations, surgeries, rehabilitation and financial difficulties, their home is always filled with solidarity and the belief that together they can overcome any obstacle. All three boys were born apparently healthy, but it soon became clear that they would have to contend with serious problems. The youngest child was diagnosed with glaucoma and cataracts immediately after birth. In the case of the two older brothers<br \/>\nDuring bathing, an abnormal glint in their eyes was noticed, which was later also<br \/>\ndiagnosed with cataracts. The family visited ophthalmologists for months.<br \/>\nfor examinations and operations in Budapest.<br \/>\nBy the time these treatments were completed, another difficulty arose: the boys' movements.<br \/>\ndid not start properly. After rehabilitation and orthopaedic examinations, polyneuropathy and Achilles tendon shortening were diagnosed in all three children. After many years of therapy, the family finally received the most difficult news at the children's clinic in the capital: all three boys were diagnosed with a genetic, incurable and, unfortunately, fatal disease. The diagnosis: Marinescu-Sj\u00f6gren syndrome. Since then, the family has been undergoing regular check-ups, physiotherapy, and ophthalmological and orthopaedic examinations. Despite surgery, the boys' eyesight is rapidly deteriorating, and they now have very poor vision. This is accompanied by a continuous deterioration in their mobility and general condition. Although their daily lives are fraught with difficulties, the boys remain true individuals, full of dreams and desires. The eldest boy, Dominik, is smart and curious, and loves to discuss current events. He takes medication for his health condition, and his greatest wish is to have a smartwatch that accurately measures his blood pressure and condition. Leon\u00e1rd, the middle boy, loves to listen to and play music.<\/p>","protected":false},"author":1,"featured_media":5444,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-5465","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>R\u00e9zm\u0171ves csal\u00e1d - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/09\/rezmuves-csalad-2\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9zm\u0171ves csal\u00e1d - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"og:description\" content=\"Egy Szabolcs megyei kis faluban \u00e9l egy \u00f6ttag\u00fa csal\u00e1d, ahol a sz\u00fcl\u0151k h\u00e1rom s\u00falyosan beteg fi\u00fat nevelnek szeretettel, kitart\u00e1ssal \u00e9s m\u00e9lt\u00f3s\u00e1ggal. B\u00e1r az \u00e9let\u00fck tele van orvosi vizsg\u00e1latokkal, m\u0171t\u00e9tekkel, rehabilit\u00e1ci\u00f3val \u00e9s anyagi neh\u00e9zs\u00e9gekkel, otthonukban mindig jelen van az \u00f6sszetart\u00e1s \u00e9s a hit, hogy egy\u00fctt b\u00e1rmilyen akad\u00e1lyt k\u00e9pesek lek\u00fczdeni. Mindh\u00e1rom fi\u00fa l\u00e1tsz\u00f3lag eg\u00e9szs\u00e9gesen sz\u00fcletett, azonban hamar kider\u00fclt, hogy komoly probl\u00e9m\u00e1kkal kell megk\u00fczdeni\u00fck. A legkisebb gyermekn\u00e9l m\u00e1r sz\u00fclet\u00e9s ut\u00e1n azonnal \u00e9szrevehet\u0151 volt a sz\u00fcrke- \u00e9s z\u00f6ldh\u00e1lyog. A k\u00e9t nagyobb testv\u00e9r eset\u00e9ben f\u00fcrdet\u00e9s k\u00f6zben t\u0171nt fel a szem\u00fck rendellenes csillog\u00e1sa, amit k\u00e9s\u0151bb szint\u00e9n sz\u00fcrkeh\u00e1lyogk\u00e9nt diagnosztiz\u00e1ltak. A csal\u00e1d h\u00f3napokon \u00e1t j\u00e1rt szem\u00e9szeti vizsg\u00e1latokra \u00e9s m\u0171t\u00e9tekre Budapestre. Mire ezek a kezel\u00e9sek lez\u00e1rultak volna, \u00fajabb neh\u00e9zs\u00e9g mer\u00fclt fel: a fi\u00fak mozg\u00e1sa nem indult meg megfelel\u0151en. Rehabilit\u00e1ci\u00f3s \u00e9s ortop\u00e9diai vizsg\u00e1latok ut\u00e1n polineurop\u00e1ti\u00e1t \u00e9s Achilles-\u00edn r\u00f6vid\u00fcl\u00e9st \u00e1llap\u00edtottak meg mindh\u00e1rom gyermekn\u00e9l. Hossz\u00fa \u00e9vek ter\u00e1pi\u00e1ja ut\u00e1n a csal\u00e1d v\u00e9g\u00fcl a f\u0151v\u00e1rosi gyermekklinik\u00e1n kapta meg a legnehezebb h\u00edrt: genetikai eredet\u0171, gy\u00f3gy\u00edthatatlan \u00e9s sajnos v\u00e9gzetes kimenetel\u0171 betegs\u00e9get azonos\u00edtottak mindh\u00e1rom fi\u00fan\u00e1l. A diagn\u00f3zis: Marinescu\u2013Sj\u00f6gren- szindr\u00f3ma. A csal\u00e1d az\u00f3ta is folyamatos kontrollokra, gy\u00f3gytorn\u00e1kra, szem\u00e9szeti \u00e9s ortop\u00e9diai vizsg\u00e1latokra j\u00e1r. A fi\u00fak l\u00e1t\u00e1sa a m\u0171t\u00e9tek ellen\u00e9re is rohamosan romlik, \u00e9s m\u00e1ra nagyon gyeng\u00e9n l\u00e1tnak. Mindehhez t\u00e1rsul a mozg\u00e1suk \u00e9s \u00e1ltal\u00e1nos \u00e1llapotuk folyamatos roml\u00e1sa. B\u00e1r a mindennapokat megannyi neh\u00e9zs\u00e9g k\u00eds\u00e9ri, a fi\u00fak tov\u00e1bbra is igazi kis egy\u00e9nis\u00e9gek, tele \u00e1lmokkal \u00e9s v\u00e1gyakkal. A legnagyobb fi\u00fa, Dominik okos, \u00e9rdekl\u0151d\u0151, szereti megbesz\u00e9lni az aktu\u00e1lis h\u00edreket. Eg\u00e9szs\u00e9gi \u00e1llapota miatt gy\u00f3gyszereket szed, \u00e9s \u00e9lete nagy v\u00e1gya egy olyan okos\u00f3ra, amely pontosan m\u00e9ri a v\u00e9rnyom\u00e1s\u00e1t \u00e9s \u00e1llapot\u00e1t. Leon\u00e1rd, a k\u00f6z\u00e9ps\u0151 fi\u00fa, zen\u00e9t hallgatni \u00e9s j\u00e1tszani gyermekek rem\u00e9ny\u00e9t.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/09\/rezmuves-csalad-2\/\" \/>\n<meta property=\"og:site_name\" content=\"Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny\" \/>\n<meta property=\"article:published_time\" content=\"2025-12-09T12:33:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-12-11T16:02:52+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/egylepesseltobb.hu\/wp-content\/uploads\/2025\/12\/1-1-scaled.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"1772\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"mag\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"mag\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/09\\\/rezmuves-csalad-2\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/09\\\/rezmuves-csalad-2\\\/\"},\"author\":{\"name\":\"mag\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/#\\\/schema\\\/person\\\/44617b6e78860a248a86a71696f68313\"},\"headline\":\"R\u00e9zm\u0171ves csal\u00e1d\",\"datePublished\":\"2025-12-09T12:33:00+00:00\",\"dateModified\":\"2025-12-11T16:02:52+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/09\\\/rezmuves-csalad-2\\\/\"},\"wordCount\":580,\"image\":{\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/09\\\/rezmuves-csalad-2\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/egylepesseltobb.hu\\\/wp-content\\\/uploads\\\/2025\\\/12\\\/1-1-scaled.jpg\",\"articleSection\":[\"\u00d6r\u00f6kbefogadott csal\u00e1dok\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/09\\\/rezmuves-csalad-2\\\/\",\"url\":\"https:\\\/\\\/egylepesseltobb.hu\\\/2025\\\/12\\\/09\\\/rezmuves-csalad-2\\\/\",\"name\":\"R\u00e9zm\u0171ves csal\u00e1d - 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Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/09\/rezmuves-csalad-2\/","og_locale":"en_GB","og_type":"article","og_title":"R\u00e9zm\u0171ves csal\u00e1d - Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny","og_description":"Egy Szabolcs megyei kis faluban \u00e9l egy \u00f6ttag\u00fa csal\u00e1d, ahol a sz\u00fcl\u0151k h\u00e1rom s\u00falyosan beteg fi\u00fat nevelnek szeretettel, kitart\u00e1ssal \u00e9s m\u00e9lt\u00f3s\u00e1ggal. B\u00e1r az \u00e9let\u00fck tele van orvosi vizsg\u00e1latokkal, m\u0171t\u00e9tekkel, rehabilit\u00e1ci\u00f3val \u00e9s anyagi neh\u00e9zs\u00e9gekkel, otthonukban mindig jelen van az \u00f6sszetart\u00e1s \u00e9s a hit, hogy egy\u00fctt b\u00e1rmilyen akad\u00e1lyt k\u00e9pesek lek\u00fczdeni. Mindh\u00e1rom fi\u00fa l\u00e1tsz\u00f3lag eg\u00e9szs\u00e9gesen sz\u00fcletett, azonban hamar kider\u00fclt, hogy komoly probl\u00e9m\u00e1kkal kell megk\u00fczdeni\u00fck. A legkisebb gyermekn\u00e9l m\u00e1r sz\u00fclet\u00e9s ut\u00e1n azonnal \u00e9szrevehet\u0151 volt a sz\u00fcrke- \u00e9s z\u00f6ldh\u00e1lyog. A k\u00e9t nagyobb testv\u00e9r eset\u00e9ben f\u00fcrdet\u00e9s k\u00f6zben t\u0171nt fel a szem\u00fck rendellenes csillog\u00e1sa, amit k\u00e9s\u0151bb szint\u00e9n sz\u00fcrkeh\u00e1lyogk\u00e9nt diagnosztiz\u00e1ltak. A csal\u00e1d h\u00f3napokon \u00e1t j\u00e1rt szem\u00e9szeti vizsg\u00e1latokra \u00e9s m\u0171t\u00e9tekre Budapestre. Mire ezek a kezel\u00e9sek lez\u00e1rultak volna, \u00fajabb neh\u00e9zs\u00e9g mer\u00fclt fel: a fi\u00fak mozg\u00e1sa nem indult meg megfelel\u0151en. Rehabilit\u00e1ci\u00f3s \u00e9s ortop\u00e9diai vizsg\u00e1latok ut\u00e1n polineurop\u00e1ti\u00e1t \u00e9s Achilles-\u00edn r\u00f6vid\u00fcl\u00e9st \u00e1llap\u00edtottak meg mindh\u00e1rom gyermekn\u00e9l. Hossz\u00fa \u00e9vek ter\u00e1pi\u00e1ja ut\u00e1n a csal\u00e1d v\u00e9g\u00fcl a f\u0151v\u00e1rosi gyermekklinik\u00e1n kapta meg a legnehezebb h\u00edrt: genetikai eredet\u0171, gy\u00f3gy\u00edthatatlan \u00e9s sajnos v\u00e9gzetes kimenetel\u0171 betegs\u00e9get azonos\u00edtottak mindh\u00e1rom fi\u00fan\u00e1l. A diagn\u00f3zis: Marinescu\u2013Sj\u00f6gren- szindr\u00f3ma. A csal\u00e1d az\u00f3ta is folyamatos kontrollokra, gy\u00f3gytorn\u00e1kra, szem\u00e9szeti \u00e9s ortop\u00e9diai vizsg\u00e1latokra j\u00e1r. A fi\u00fak l\u00e1t\u00e1sa a m\u0171t\u00e9tek ellen\u00e9re is rohamosan romlik, \u00e9s m\u00e1ra nagyon gyeng\u00e9n l\u00e1tnak. Mindehhez t\u00e1rsul a mozg\u00e1suk \u00e9s \u00e1ltal\u00e1nos \u00e1llapotuk folyamatos roml\u00e1sa. B\u00e1r a mindennapokat megannyi neh\u00e9zs\u00e9g k\u00eds\u00e9ri, a fi\u00fak tov\u00e1bbra is igazi kis egy\u00e9nis\u00e9gek, tele \u00e1lmokkal \u00e9s v\u00e1gyakkal. A legnagyobb fi\u00fa, Dominik okos, \u00e9rdekl\u0151d\u0151, szereti megbesz\u00e9lni az aktu\u00e1lis h\u00edreket. Eg\u00e9szs\u00e9gi \u00e1llapota miatt gy\u00f3gyszereket szed, \u00e9s \u00e9lete nagy v\u00e1gya egy olyan okos\u00f3ra, amely pontosan m\u00e9ri a v\u00e9rnyom\u00e1s\u00e1t \u00e9s \u00e1llapot\u00e1t. Leon\u00e1rd, a k\u00f6z\u00e9ps\u0151 fi\u00fa, zen\u00e9t hallgatni \u00e9s j\u00e1tszani gyermekek rem\u00e9ny\u00e9t.","og_url":"https:\/\/egylepesseltobb.hu\/en\/2025\/12\/09\/rezmuves-csalad-2\/","og_site_name":"Egy L\u00e9p\u00e9ssel T\u00f6bb alap\u00edtv\u00e1ny","article_published_time":"2025-12-09T12:33:00+00:00","article_modified_time":"2025-12-11T16:02:52+00:00","og_image":[{"width":2560,"height":1772,"url":"https:\/\/egylepesseltobb.hu\/wp-content\/uploads\/2025\/12\/1-1-scaled.jpg","type":"image\/jpeg"}],"author":"mag","twitter_card":"summary_large_image","twitter_misc":{"Written by":"mag","Estimated reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/egylepesseltobb.hu\/2025\/12\/09\/rezmuves-csalad-2\/#article","isPartOf":{"@id":"https:\/\/egylepesseltobb.hu\/2025\/12\/09\/rezmuves-csalad-2\/"},"author":{"name":"mag","@id":"https:\/\/egylepesseltobb.hu\/#\/schema\/person\/44617b6e78860a248a86a71696f68313"},"headline":"R\u00e9zm\u0171ves csal\u00e1d","datePublished":"2025-12-09T12:33:00+00:00","dateModified":"2025-12-11T16:02:52+00:00","mainEntityOfPage":{"@id":"https:\/\/egylepesseltobb.hu\/2025\/12\/09\/rezmuves-csalad-2\/"},"wordCount":580,"image":{"@id":"https:\/\/egylepesseltobb.hu\/2025\/12\/09\/rezmuves-csalad-2\/#primaryimage"},"thumbnailUrl":"https:\/\/egylepesseltobb.hu\/wp-content\/uploads\/2025\/12\/1-1-scaled.jpg","articleSection":["\u00d6r\u00f6kbefogadott csal\u00e1dok"],"inLanguage":"en-GB"},{"@type":"WebPage","@id":"https:\/\/egylepesseltobb.hu\/2025\/12\/09\/rezmuves-csalad-2\/","url":"https:\/\/egylepesseltobb.hu\/2025\/12\/09\/rezmuves-csalad-2\/","name":"R\u00e9zm\u0171ves csal\u00e1d - 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