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They are raising three children, the eldest of whom, Julcsi, is 13 years old and has tuberous sclerosis complex.
\nlives with an illness. His condition is accompanied by therapy-resistant epilepsy, so he studies on an individual curriculum and
\nYou require regular, specially tailored improvements to your health. From September onwards
\nis starting 7th grade.
\nJulcsi's sister will be starting primary school in September, and her brother will be starting Year 9 at secondary school.
\nis starting the school year.
\nJulcsi requires daily care and constant supervision, which is why her mother has spent years
\nsince he has been on GYOD, which has significantly reduced the family's earning potential. The situation is further
\nThis is made more difficult by the fact that Julcsina underwent skull surgery in January and July 2025.
\nImproving the child's condition, reducing learning difficulties and maintaining quality of life
\nRegular development, such as speech therapy and motor skills development, is essential for this purpose.
\nHowever, the family is no longer able to finance these costs on its own.
\nAccording to the quote issued by the developer, Julcsi will receive three 90-minute sessions per month.
\nfrontal lobe therapy development is necessary. The fee for one session is 16,000 forints, which amounts to 48,000 forints per month.
\nforints, which amounts to 576,000 forints per year.
\nThe family turns to the programme for help so that Julcsi can receive the therapies that are vital for her.
\ncontinue and have a chance to improve their condition and live as full a life as possible. During bathing, an abnormal glint in their eyes was noticed, which was later also
\ndiagnosed with cataracts. The family visited ophthalmologists for months.
\nfor examinations and operations in Budapest.
\nBy the time these treatments were completed, another difficulty arose: the boys' movements.
\ndid not start properly. After rehabilitation and orthopaedic examinations, polyneuropathy and Achilles tendon shortening were diagnosed in all three children. After many years of therapy, the family finally received the most difficult news at the children's clinic in the capital: all three boys were diagnosed with a genetic, incurable and, unfortunately, fatal disease. The diagnosis: Marinescu-Sj\u00f6gren syndrome. Since then, the family has been undergoing regular check-ups, physiotherapy, and ophthalmological and orthopaedic examinations. Despite surgery, the boys' eyesight is rapidly deteriorating, and they now have very poor vision. This is accompanied by a continuous deterioration in their mobility and general condition. Although their daily lives are fraught with difficulties, the boys remain true individuals, full of dreams and desires. The eldest boy, Dominik, is smart and curious, and loves to discuss current events. He takes medication for his health condition, and his greatest wish is to have a smartwatch that accurately measures his blood pressure and condition. Leon\u00e1rd, the middle boy, loves to listen to and play music.<\/p>","protected":false},"author":1,"featured_media":5476,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-5471","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-orokbefogadott-csaladok"],"yoast_head":"\n