My little son Ábel will be turning five in January.
Abel has Sturge-Weber syndrome (not hereditary) and Antithrombi. At the age of 3 months, he had eye surgery for glaucoma, 12 hours later he had epileptic seizures and suffered a stroke.
After a few hours, he was on a ventilator until the continuous respiratory arrest attacks ended, after which he spent more than 2 months in intensive care and during this time he also received a tracheostomy (tracheal cannula). To this day, Ábel's seizures most often occur with respiratory arrest. Currently, he is unable to do anything independently except roll over and cannot speak. We are constantly going to Solymár for improvements, including the Borsóház, which is not TB-based. He has early development and various exercises at home. Our goal is to get as much out of Ábel's condition as possible.