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One step more foundation

W. Flora and her family

One step more foundation

W. Flora and her family

Flóra was born with bilateral clubfoot in 2013. After endless treatments and persistent research, she was diagnosed with the rare genetic disorder Charcot-Marie-Tooth type 2C, which causes her to use a wheelchair. She attends after-school development sessions 3-4 times a week.

In the summer of 2024, he underwent a very serious foot reconstruction surgery, the purpose of which was to allow his feet to land on the ground (one of the symptoms of CMT is foot and hand deformation and muscle weakness) and to be able to stand stably and walk while holding on. He is currently undergoing rehabilitation for this surgery, in addition to slowing down the severe scoliosis.

CMT is a disorder of the peripheral nervous system that controls the muscles, affecting the motor and sensory nerves. It is usually a slowly developing disease, with completely different symptoms for each individual. In the most severe cases, the disease also affects the respiratory muscles and breathing difficulties may occur. The family's goal is to slow down the deterioration and the appearance of symptoms, strengthen the muscles, and stimulate the nerves.

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