Marci developed similarly to his peers until he was 15 months old. He was already standing and walking independently at the age of 10 months. Then he received a vaccination, after which he started walking on his toes 3 weeks later, and within a few days he lost his ability to walk and at the same time his balance.
Their neurologist at the time diagnosed him with cerebral palsy. They sent Marc for an MRI, which showed signs of oxygen deprivation. This gave the neurologist an explanation for his suspicion.
In Marcin, the vaccination activated a little-known genetic disorder called Aicardi-Goutieres 7 syndrome. Marcell is currently participating in the first drug study in Austria, which his parents learned about through an American group.
His parents dream of one day seeing their son play freely without their help. Marci fights with exemplary perseverance and will to achieve his goal and be able to move around without a wheelchair or canes. Their therapists stand by them and look at him with admiration. They assure him that with such determination, this will not remain just a dream.
Let's help Marcin and his family together so that the boys can receive all the improvements that will bring them one step closer to realizing their dream! 🙂