Mira was born in December 2015 at 37 weeks' gestation, weighing 2880 grams and with an Apgar score of 9/10. A residual haemorrhage in her brain was detected at birth, so tests were started immediately. After a series of MRI, EEG and neurological tests, he was diagnosed with axial hypotonia, which significantly affected his motor development and psychomotor skills.
Mira's motor development is slow and cumbersome: she has a low sleep requirement, rolls and can sit on all fours for short periods of time while leaning on her hands. Her diagnosis is psychomotor retardation and flaccid cerebral palsy. In addition, he has been diagnosed with severe mental retardation (SNI status) by the educational services.
Since the age of six months, he has been receiving gymnastics and physiotherapy twice a week, as well as regular developmental sessions. He is currently undergoing intensive rehabilitation to improve his condition. Tests are still ongoing, but the specialists have not yet been able to establish a more precise diagnosis.
Mira is not self-sufficient, she cannot even feed herself. Her weekdays revolve around daily improvements. Her mother stays at home with her on a care allowance, looking after her day and night while her father works to provide Mira with the necessary conditions. The days start with feeding and exercise in the morning, followed by various development activities in the afternoon.
The family takes every opportunity to help Mira develop. They have also participated in equestrian therapy camps, where she gained new experiences and new skills. She is currently a private student at the Paradise School. She receives home visits from the developers and is looked after in her home.
Every day Mira sets an example for all of us with her perseverance, her smile and her unwavering will to live.
Together, let's help Mira continue to grow and experience the wonder that she is to the world!