Adam was born in August 2015 in Tiszaújlak, Transcarpathia. In the first three years of his life he developed nicely, without any problems, everything was according to his age.

But in 2019, just before her fourth birthday, she had unexpected difficulties: after a mild cold, her parents noticed that she was having trouble with her stairs. Genetic tests revealed a shocking result - Adam was found to suffer from a rare, serious genetic disorder, Duchenne muscular dystrophy, which was thought to be incurable at the time.

The family moved permanently to Hungary in 2021 to provide better care and opportunities for Adam. At present, the boy is still ambulatory and self-sufficient, but he can no longer run and needs help climbing stairs and getting up from the ground.

His only chance of stopping the disease is Elevidys gene therapy, which can slow down and even stop muscle atrophy, thus preserving Adam's current condition. The treatment is crucial because dead muscle tissue can no longer regenerate.

The family is working hard to get Adam the life-saving treatment he needs - but they need support.
Let's help Adam together in the hope of a fuller life!