It was an incomparable, wonderful moment when we could hold our healthy newborn baby girl in our arms. Our happiness was boundless that our family was complete with the arrival of Zoé. However, life had a difficult path for her. Eleven months. That was all we had from our carefree, joyful childhood.
It all started on a cold winter morning. Zoé was a little cold, but the morning was still routine. After breakfast, we played, and she was already standing up skillfully. She enjoyed the situation, being able to view the world from a new perspective. She was an inquisitive little girl with a smile. However, while playing, I noticed that her skin was marbled unlike usual, and her mood suddenly became lethargic. I felt that something was wrong. I immediately contacted the pediatrician, who recommended that we immediately rush her to the hospital. The minutes of waiting passed with leaden slowness. I will never forget the room, the moment, or the doctor who told us the devastating news. Hearing the word encephalitis in relation to your child is a hell of a bad feeling. Our world quickly collapsed. She was in intensive care for almost 20 days, and Zoé was put to sleep there for 14 days. During this period, she developed bilateral pneumonia. It was a difficult time for all of us. However, the little one took up the fight against the disease and began to respond well to the treatments he received. However, our joy did not last long. At the age of two, he was diagnosed with residual resistant epilepsy resulting from his disease. He has many seizures. I keep a diary of the frequency and course of these. Currently, they are trying to treat him with several medications. He was diagnosed with a specific developmental disorder mixed with Emelet SNI (special educational needs). Currently, we go to the doctor a lot because of the possibility of ADHD.
The name Zoé means LIFE. Our little girl has shown at a very young age that her will to live and her attachment to life are boundless. The path she is on is challenging, requiring constant supervision that makes everyday life difficult. We accept every offering that comes to her with the greatest gratitude!
