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One step more foundation

M. Kiara and her family

One step more foundation

M. Kiara and her family

Kiara's struggle began in her mother's womb. At the 18-week ultrasound, she was diagnosed with aortic stenosis. After the diagnosis, they were taken to Budapest's Szent János Hospital, where the cardiologist professor told the parents what to expect after the examination. – 50-50%, that there could be something wrong with her, but it will only be revealed at birth.

The tests continued with a placental biopsy to screen for the most serious genetic diseases. Mónika was given great news after the test: she was carrying a completely healthy baby girl. Kiara was born by scheduled cesarean section and her heart was working properly. After the tests, they were discharged from the hospital and they could finally go home. The baby girl developed completely normally until she was 3 months old.

One day, like someone who can't see or hear, I clapped my hands, showed him toys, made noise, and he didn't react. He didn't like to be on his stomach, his posture wasn't right, he didn't lift his head up, and his neck was crooked. That same evening, we took him to the local hospital, where the night doctor examined him and confirmed that his pupils really weren't reacting to light the way they should, his mother told us.
Basic examinations began at the local hospital, but further examinations are only possible in specialized hospitals (MRI, etc.). The examinations continued (Blood tests, skull ultrasound, heart ultrasound, neurological examinations, reflexes, etc. Several doctors checked how responsive his eyes were, pupil dilation, ophthalmology, and countless other examinations).

After the tests, they were given an appointment for a genetic test in a few months. – Thin upper lip, smaller eye slit, eyes set far apart, ears set lower, higher palate. The final report listed how many places the little girl still needed to be taken. On the advice of the developers and other mothers, they visited a specialist in Deven, who determined that Kiara was hypotonic.
The next examination was neurology, where the MRI result suggested a brain developmental disorder, but since no pathological changes were visible, this result was also negative. The parents were advised to undergo improvements. They tried every improvement, they went through many painful examinations, but it ended with a negative result. According to the neurologist, the detection of neurological diseases is often a needle in a haystack. The parents received permission to support a full genetic examination. They have been waiting for a diagnosis for two years.
Kiara is now 5 years old, a tiny miracle who will show the world and all the doctors that nothing is impossible. Everything is possible, you just have to want it!
She's always smiling, kind to everyone, gymnasts and developers love her, they just call her cute. A real little love ball.

He has incredible willpower and despite his illness, he has a lot of strength.

Let's help Kiara and her family continue to fight and support their daughter so that she can once again live a full life and play with her peers.

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