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One step more foundation

H. Julcsi and her family

One step more foundation

H. Julcsi and her family

They are raising three children, the eldest of whom, Julcsi, is 13 years old and lives with tuberous sclerosis complex. Her condition is accompanied by therapy-resistant epilepsy, so she studies according to an individual curriculum and needs regular development tailored to her health condition. She will start 7th grade in September. Julcsi's sister will start first grade in primary school in September, and her brother will start 9th grade in secondary school. Julcsi requires daily care and constant supervision, which is why her mother has been on GYOD (temporary disability allowance) for years, significantly reducing the family's income. The situation is further complicated by the fact that Julcsi underwent skull surgery in January and July 2025. In order to improve the child's condition, reduce her learning difficulties and maintain her quality of life, regular development, such as speech therapy and motor development, is essential. However, the family is no longer able to finance this on its own. According to the quote provided by the therapist, Julcsi needs three 90-minute sessions of frontal lobe therapy per month. Each session costs 16,000 forints, which amounts to 48,000 forints per month and 576,000 forints per year. The family is turning to the programme for help so that Julcsi can continue the therapies that are vital for her and have a chance to improve her condition and live as full a life as possible.

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