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One step more foundation

I. Lia and her family

One step more foundation

I. Lia and her family

It all started in May 2024. One morning, a small, hard lump appeared on Lia's body, which at first didn't seem worrying. She was taken to a doctor, who initially suspected a sting. But as the bump did not go away and grew larger over time, the doctor came to a different conclusion: a haemangioma, a benign tumour.

However, the lump did not respond to the medication and continued to grow, so it became clear that there was a more serious problem.On 6 June 2024, Lia and her mother went to the Jósa András Teaching Hospital in Nyíregyháza, where they started the medication. She was given propanolol, but the tumour continued to grow. As the treatment did not bring a rapid improvement, in September they travelled to the Heim Pál Children's Hospital in Budapest, where a more detailed examination began.

After the MRI scan at the end of September, the doctors said it was not haemangioma, but they could not yet make a definitive diagnosis. On 2 October, a tissue sample was taken, and on 7 October, the terrible news arrived: Lia was suffering from a rare cancer called alveolar rhabdomyosarcoma. The family was devastated, but they tried to stay together, even though the diagnosis had torn their lives apart.

Commuting between hospitals was a huge burden. Lia's brother was looked after by their mother, who was unable to work. On 8 October they travelled to Debrecen to the local clinic to continue their treatment. On 14 October, a CT scan was done, which fortunately showed no metastases. On 21 October, chemotherapy treatment started. The first week was particularly stressful for Lia: she struggled with nausea, loss of appetite and fatigue, but gradually recovered and after two weeks showed improvement.

His father works, but he has to miss a lot of time from work. Their two-room garden house has been converted to provide a separate, clean environment for Lia to recover safely.
On 2 December, he had his seventh treatment, which was difficult for him, he was very hungry and slept a lot. They were discharged on 6 December, but the stay at home didn't last long because Lia came down with a fever and had to go back to hospital the next day. On 9 December, they had an assessment of her condition and an MRI scan under general anaesthesia. Fortunately, the results were very positive: Lia's tumour had shrunk considerably.
On 13 January the hickman cannula was implanted. Lia is currently undergoing proton therapy abroad, halfway through the treatment. The treatment is funded by NEAK, but the family has to pay for accommodation and travel. Finding the money to cover these costs has become particularly important - and they are asking for help.
Lia currently has a runny nose and cold all the time. She needs to use a nasal spray and have her nose vacuumed regularly, as the mucous membrane is damaged and she will not be able to smell the scents, and her nose will not grow in size until puberty.

As part of the treatment protocol, an MRI scan was performed, which showed no change in the condition - a good result at this stage.
They are expected to stay abroad for another month, before returning home for a final chemotherapy treatment.
Let's help give Lia a chance to live, to heal, to play, to laugh - to have a happy childhood! Because together we can make miracles happen.

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