Born on 29 June 2023, Kristóf faced a unique challenge early in his life. He lives with a rare genetic disease called KCNQ2 - a potassium ion channel disorder that impairs his intelligence and mobility.
His development is significantly behind that of his peers and no one can say today whether he will ever be able to walk or talk independently. Every little progress has to be worked hard.
For Kristóf, regular improvements are the key: Gymnastics, physiotherapy, physiotherapy sessions, hydrotherapy and other complementary treatments help him to get the most out of his life. However, these can be a heavy financial burden for the family, with the cost of improvements and special equipment being considerable.
As parents, we do our utmost to ensure that Kristóf is given every opportunity to develop. Any support that brings us closer to helping our little boy to live his life to the fullest would be a huge help.
