P. David and his family
Dávid was born a premature baby boy. At birth, he suffered from intrauterine oxygen deprivation, followed by a grade 2 cerebral hemorrhage. His physical development as an infant was weaker than average. In 2022, they managed to move to Hungary from Ukraine on a voluntary basis for the sake of their child, as Dávid needed developments that they did not have the opportunity to have in Ukraine.
Benji and his family
Our 3.5-year-old son Benji was diagnosed with Duchenne muscular dystrophy at six months old. As parents, we naturally try to do everything we can to somehow provide him with the best quality of life possible. There are several experimental gene therapy treatments for this disease in progress, and there is one (Elevidys) that is already licensed and available in a few countries. However, its price starts at 2.9 million US dollars.
P. Natalia and her family
Natália was born completely healthy, but when she was one and a half years old, her parents noticed that their daughter's movements were unsteady. A series of tests began, which revealed that she suffers from mucolipidosis type IV, a genetic, incurable disease that leaves the five-year-old girl unable to walk or talk.
Stephen and his family
István is 8 years old, and we have been attending development programs since he was 4 months old. He suffered from oxygen deprivation at birth, which affected his nervous system and movement. He is currently in first grade. Since we were looking for a small class in Budapest, we managed to find a school for him in Zugló. Egymik rejected him in several places, so we ended up attending a school where we have to pay a monthly foundation contribution of 35 thousand forints.
Father Noel and his family
Noel is a beautiful 3.5 year old boy. He was a much-anticipated child and his mother couldn't wait to hold her unborn child in her arms. His mother, who was born by caesarean section, was put under anesthesia. When he woke up from the anesthesia, doctors and nurses were standing by his bedside.
S. Norbi and his family
Norbi is 13 years old and has been diagnosed with autism and ADHD. His days are particularly demanding, but that doesn't stop them from giving him everything he needs. Norbi takes medication for his hyperactivity so that he can concentrate and pay attention better at school. Learning at school is not an easy task for him, so they help him a lot at home.
Petwill and his family
Marcell and Peter-William are two very wonderful and talented children. Both children are visually impaired, hearing impaired and autistic.
Marcell is 24 years old and spends his weekdays at Sarepta Home - which was recommended by the experts - because he is in a community and receives much more stimulation than if he were at home. Such young people with moderate intellectual disabilities, when they come home after school, slowly deteriorate mentally, and the family wanted to avoid this. Fortunately, he really likes indoor life, but at the same time he also requires home care. Therefore, he spends the weekends, from Friday to Sunday evening, with his family.
L. Áron Levin and his family
Áron is a wonderful, always smiling little boy whose life has been full of challenges since the moment he was born. He was deprived of oxygen at birth, and as a result, he was diagnosed with cerebral palsy and epilepsy. Although these conditions pose significant obstacles for him, Áron works with great willpower and perseverance to improve day by day.
S. Kitty and her family
Kitti was 3 months old when her breathing monitor signaled, fortunately there was no respiratory arrest. Her parents took her to the hospital, where the tests began. After the results of the tests, which were determined by the MRI of the skull, Kitti had a brain deficit, which means that the cerebellum is atrophying and most of the white matter has died. These abnormalities affect her movement and sense of balance. Kitti has been attending developmental classes since she was 3.5 months old.
K. Gergő and his family
Gergő arrived as the second child after a calm, problem-free pregnancy. He was only able to spend 6 weeks at home after his birth. His mother noticed that he was weaker and much more sleepy than his brother. He was eating less and less and was swallowing what he had.