Ádin suffers from Duchenne muscular dystrophy. His parents received the results of the genetic test on 17 December 2022, when the diagnosis was made.
Duchenne muscular dystrophy is a congenital, hereditary disease involving the gradual destruction of muscle cells. Over time, the muscles are replaced by fatty and connective tissue that is incapable of muscle function, leaving the body increasingly weakened and eventually unable to move independently or support itself.
In 2024, Adin received gene therapy, which gave him a huge opportunity for a cure. In the first year after treatment, he made a lot of progress: he became much stronger and it was a pleasure to see how much progress he had made.
Although gene therapy is not a permanent solution, it would be a huge achievement if this condition could be maintained in the longer term.
Despite all efforts, his blood test results show high levels of inflammation and muscle destruction is currently higher than they feel is safe. Although there is no outward sign of deterioration for the time being, the fear of a sudden deterioration is also a source of hope. They will soon travel to Dubai to see their doctor, where they will discuss the possibility of steroid treatment. A new drug, costing 7 million forints a month, has also been suggested that could also slow down the disease. They want to give Adin every possible chance.
