Máté was born with a very rare genetic disorder that affects the muscles of the body. On the 5th day of his birth, his parents noticed that he could not hold his tiny head properly. They visited their family doctor with their observations, who reassured them that Máté would only develop in a few days. Unfortunately, this was not the case. My 4-month-old had already become so visible that his neck was really weak and he was lagging behind in large movements. He could not lift his head. Then, on medical advice, we were admitted to a developmental center. He was taken to private therapies with him: Dévény and Tsmt exercises. Unfortunately, it did not bring much success to the family's life. At 11 months old, he was seen by a neurologist specializing in muscle research, who diagnosed mild neck and shoulder girdle hypotonia. His parents were not reassured by the diagnosis and a full neurological examination was initiated in Hungary, in addition to therapies. The neurological examination did not give an accurate diagnosis of little Máté's condition.
In the fall of 2015, Máté was only one and a half years old when he underwent a genetic test in Vienna. The parents were diagnosed after 3 years that Máté was extremely hypotonic. During his embryonic life, due to a lack of selenium and protein, most of his muscles could not develop.
"In the meantime, we did a lot to ensure that Máté could develop properly. We tried everything that came our way. We researched therapeutic methods and looked for everything that would be most suitable for Máté. Máté would push himself backwards while lying on his back. That was all his movement. The doctors didn't encourage us with anything good. They said we should get used to the idea of a wheelchair. Of course, we didn't want to hear about it. Then we said: we know and feel that we need to do more so that Máté can walk. We believe in the impossible. Our year 2016 was about almost nothing but a series of therapies. A year of very intensive therapy followed in Prague. Where Renata, the therapist, first said that a lot of work, humility and perseverance are needed for Máté to be able to walk, but the child's attitude is the most necessary for this," his mother said.
Máté, he fought, he believed and he didn't give up. He showed the world what he was capable of.
A true miracle boy.
Therapies have been a constant part of their lives ever since. In 2018, a rapidly deteriorating scoliosis suddenly crept into their lives. Another therapy became a part of their lives. A corset became one of their friends, helping to support the spine. Soon after, a technical friendship was formed, the night CP machine, which provides Máté with the right amount of oxygen, because without it, he would be oxygen-deficient several times a night. They need special shoes to keep his ankles healthy. This summer, little Máté underwent a muscle-relaxing surgery, which was necessary due to a deformity in his spine. The parents know that therapies will be a part of their lives in the future as well.
Máté is an admirable fighter who never gives up. Despite his illness, he is a perpetually moving example of how being in motion is one of the most important things.
I was born this way so that people can see that it's possible to live happily 😊
"Matthew"
Let's help Máté and his family get the improvements that will help them achieve new miracles!
