In a small village in Szabolcs County, there is a family of five where the parents raise three seriously ill boys with love, perseverance and dignity. Although their lives are filled with medical examinations, surgeries, rehabilitation and financial difficulties,
their home is always filled with solidarity and the belief that together they can overcome any obstacle. All three boys were born apparently healthy, but it soon became clear that they would have to contend with serious problems. The youngest child was diagnosed with cataracts and glaucoma immediately after birth. In the case of the two older brothers, an abnormal glint in their eyes was noticed while bathing them, which was later also diagnosed as cataracts. The family travelled to Budapest for months for eye examinations and operations. By the time these treatments were completed, another difficulty arose: the boys' motor skills were not developing properly. After rehabilitation and orthopaedic examinations, polyneuropathy and Achilles tendon shortening were diagnosed in all three children. After many years of therapy, the family finally received the most difficult news at the children's clinic in the capital: all three boys had been diagnosed with a genetic, incurable and, unfortunately, fatal disease
disease of genetic origin, incurable and unfortunately fatal. The diagnosis: Marinescu-Sjögren syndrome. Since then, the family has been undergoing continuous check-ups, physiotherapy, ophthalmological and orthopaedic examinations. Despite the surgeries, the boys' eyesight is rapidly deteriorating, and they now have very poor vision. This is accompanied by a continuous deterioration in their mobility and general condition. Although their daily lives are fraught with difficulties, the boys remain true individuals, full of dreams and desires. The eldest boy, Dominik, is intelligent and inquisitive, and loves to discuss current affairs. He takes medication for his health condition, and his greatest desire is to have a smartwatch that accurately measures his blood pressure and condition. Leonárd, the middle son, loves to listen to and play music on his phone, which is now outdated and slow. The youngest, Mikike, is a real musical talent: his long-held dream is to have a synthesiser on which he can play anything. He says he would like to have a birthday party where he can play music. However, the most difficult moments for the family do not come in hospitals,
but when the boys, fully aware of their condition, ask what will happen to them when their parents are no longer there for them. These questions leave deep wounds, but the parents gather all their strength to restore their children's hope.
For them, every smile, every hug and every word spoken with love gives them new strength to carry on. Despite the daily struggles, they believe that help is available and that their children's dreams, however small, can come true.