Mr Brájen and his family
Brájen’s story began differently from the very day he was born.
A várandósság alatt minden vizsgálat azt mutatta, hogy egészséges kisfiú érkezik. A szülei csak a születésekor tudták meg, hogy Brájen dongalábbal jött a világra.
Ever since then, their lives have revolved around treatments, operations and hope.
The hospital is nearly 70 kilometres from their home. The journeys, medical examinations, special shoes and therapy sessions place a huge burden on them, not only physically but also financially.
However, Brájen is not alone.
He is supported by a family of seven, who are doing everything in their power to ensure that one day he will be able to run, play and enjoy his childhood just like any other little boy.
His father lost his job because of his frequent absences from work due to hospitalisation. He is now undergoing retraining, driven by a single goal: to secure a stable future for his family once again.
Meanwhile, Brájen attends developmental sessions, takes part in movement therapy, and practises with his family every day at home. The family celebrate every small step forward together, because they know that these little successes may one day form the foundations of a more independent life.
Brájen is a quiet, curious little boy. He loves colourful, educational toys, and his smile wins people over in an instant.
Thanks to his treatment, Marci is still attending nursery; he loves cycling and playing carefree. His family are fighting to ensure he can receive the gene therapy that offers him hope, as, given his age, this may well be his best chance to do so right now.
Your support could help ensure that Marci gets this life-changing opportunity and can remain an active, cheerful little boy for many years to come.
N. Marcell and his family
Marci is a cheerful 5-year-old boy who lives with Duchenne muscular dystrophy. He was diagnosed with the condition three years ago, and since then, efforts have been made to maintain his mobility through regular aqua aerobics, physiotherapy and other treatments.
Thanks to his treatment, Marci is still attending nursery; he loves cycling and playing carefree. His family are fighting to ensure he can receive the gene therapy that offers him hope, as, given his age, this may well be his best chance to do so right now.
Your support could help ensure that Marci gets this life-changing opportunity and can remain an active, cheerful little boy for many years to come.
N. Rajmond and his family
Rajmi was born in 2013, and right up until the age of 4½, there was no indication that he would have to battle a serious illness. It was then that it emerged that he was suffering from Duchenne muscular dystrophy – a rare, incurable condition that gradually weakens his muscles.
The family is doing everything they can to help him retain his mobility for as long as possible. Regular physiotherapy and rehabilitation are essential for him, as these can help slow down the deterioration of his condition and maintain his independence.
With your support, Rajmi can continue to receive the treatment that is vital for him, and he will have the chance to remain an active, smiling little boy for many years to come.
Elina M. and her family
Elina was born on 25 November 2016 with an extremely serious congenital heart defect: her left ventricle had not developed. During her first year of life, she underwent several life-saving operations, and since then she has had to undergo countless painful procedures.
Due to her illness, she has to cope with circulatory and digestive problems, a lack of oxygen, and the after-effects of a stroke, which has left the left side of her body paralysed. Despite all this, Elina is a real little fighter: her smile, her perseverance and her love of life give her family strength every day.
Your support could mean that Elina can continue to receive the treatment she needs and enjoy as many happy moments as possible with her loved ones.
L. Hanna and her family
Hanna was born on 26 July 2022 in Zalaegerszeg, at just 24 weeks’ gestation. She came into the world weighing just 350 grams and suffering from oxygen deprivation, and subsequently suffered a severe brain haemorrhage, which has left a lasting mark on her life.
Due to her multiple disabilities, she requires constant care and round-the-clock supervision. Despite all this, Hanna is a cheerful, curious and lively little girl who loves discovering the world every day.
Your support could give Hanna the chance to receive the treatment and therapy she needs to develop, and ensure that her smile continues to bring hope to her family for many years to come.
K. Dzsenifer and her family
Jennifer was born on 3 January 2013 in Szekszárd. Her life began with a tremendous struggle right from the very first moments: a serious infection put her life in danger, and then an extensive brain haemorrhage changed her fate forever.
She is currently unable to walk, sit or speak unaided. She lives with epilepsy, muscle stiffness and scoliosis, and therefore requires ongoing rehabilitation and specialist treatment.
Despite all this, Dzsenifer is a cheerful, loving little girl who proves day after day just how powerful the will to live can be.
Her mother is raising her on her own and is by her side every minute of the day, which is why she is unable to take on a job. For them, any help means another chance for Dzsenifer to receive the treatment and support she so desperately needs.
Your support gives a little girl and her mother hope that, despite the difficulties, they can look to the future with a smile.
Levente K. and his family
Levente was born in 2017 suffering from a lack of oxygen. His mother soon realised that something was wrong, as she had previously lost a child to the same rare genetic condition. Tests confirmed her worst fears: Levente has MPS II.
Since 2023, she has been attending weekly enzyme replacement therapy sessions, which she will continue to receive for the rest of her life. She also attends a special school, to which her family takes her every day with love and perseverance, so that she can have the best possible chance of development.
Levente is a cheerful, brave little boy who, despite all the difficulties, wants to enjoy the same kind of childhood as his peers.
The family is now asking for help to ease the financial burden of treatment, travel and day-to-day expenses, so that Levente can continue to receive the care he so desperately needs.
Every bit of support brings hope and security to a family that fights for their child day in, day out, out of love. ❤️
K. Benjámin and his family
Benjamin’s development suddenly came to a halt when he was one and a half years old. His speech failed to develop, his eating habits changed completely, and he was later diagnosed with severe intellectual disability and an autism spectrum disorder. He still does not speak and requires constant supervision.
In the hope that he would make progress, the family even gave up their home so that Benjamin could receive the care he needed. Recently, however, he has been experiencing episodes of aggression, so he is currently undergoing tests and is unable to attend school.
His mother is by his side 24 hours a day, whilst his father tries to support the family through odd jobs. Making ends meet and covering day-to-day expenses are becoming an ever-greater burden for them.
They are now asking for help to ensure that Benjamin continues to receive the care he needs and that the family’s day-to-day life remains secure.
Every donation brings hope and a little relief to a family who fight with love for their little boy, day in, day out. ❤️
Eszter Gy. and her family
Eszter Gy. has had severe, multiple disabilities since birth. She is unable to speak, walk, eat or sit unaided, and requires full-time care. Throughout her life, she has had to cope with countless health problems: epilepsy, severe pneumonia, multiple bouts of COVID-19 and numerous other complications.
Her mother never gave up. She brought Eszter up on her own after losing her husband in tragic circumstances, and ever since then she has been doing everything in her power to ensure her daughter receives the best possible care. Today, she and her husband are trying to make ends meet with their three children, but the ongoing costs of medication, nappies, household bills and medical care place an enormous burden on them.
Despite all this, Eszter’s smile continues to give the family strength to this day. She is proof that love can help us through even the most difficult situations in life.
The family is now asking for help to cover their day-to-day living expenses, medication and utility bills, so that Eszter can continue to receive the care she will need for the rest of her life.
Every donation brings a little relief to a family that has been fighting tirelessly for many years, sustained by the power of love. ❤️
G. H. Gergely and his family
The life of a family with four children is full of challenges to begin with, but for them, everyday life places an even greater burden on them. Of the twin boys, Gergő was born prematurely and suffered a severe, bilateral stroke when he was just a few days old.
Today, he is a young man with severe, multiple disabilities. He cannot speak, cannot move about unaided, lives with epilepsy, has a shunt, and needs assistance every minute of the day. Without ongoing rehabilitation, his condition would deteriorate, his muscles would stiffen further, and he would have fewer and fewer opportunities to engage with the outside world.
The family can only afford most of the therapy privately, whilst the father works and the mother looks after Gergő on GYOD leave. Raising four children, the costs of his therapy and a much-needed home renovation now place a huge financial burden on them.
The family is now asking for help so that Gergő can continue to receive the support he needs to maintain his health and quality of life.
Every donation gives Gergő another chance not to have to give up hope of making progress. ❤️