Levente L. and his family
In 2020, Levi was diagnosed with Duchenne muscular atrophy, then considered an incurable disease. However, in 2023, a new gene therapy, Elevidys, was developed that could significantly slow the progression of the disease. It's a treatment that we would like Levi to have, but it costs US$2.9 million.
D. Molli and his family
Molli is a premature baby and lives with cerebral palsy (CP), a central nervous system injury.
It arrived in August 2022, a little over 6 weeks earlier than expected.
Being a premature baby, all statuses are measured against his corrected - planned - date of birth, so although we were patient with his development, his unstable head and delayed interest in toys were a cause for some concern, so we booked him in for developmental neurology.
VII. Signing ceremony
Family Day II.
Gala evening
T. Greta and her family
Adél Gréta Takács was born on 4 October 2021 by emergency caesarean section. From the very first days she faced serious health challenges. A few weeks after her birth, it was discovered that she was born with Robertson's translocation Down syndrome. At three weeks old, she suffered a stroke while in hospital and was diagnosed with epilepsy a few months later.
Anna K. and her family
Anna was born premature in 2017. Since birth she has been living with cerebral palsy, which affects all four limbs with spasticity. Her life is about development - her family works every day to ensure she has the best possible development.
M. Márk and his family
Márk was born on December 11, 2014, 8 months premature, and his life journey began with a quick home birth. The pregnancy and the first year passed without any problems, but over time, worrying changes began to appear. From the age of one, Márk's development slowed down, and a neurologist diagnosed him with hypoxia and developmental disorders.
Thai Charity Concert
H. Sarah and her family
Sarah's life began with an extraordinary struggle when she was just 23 weeks old and came into the world. Born with twins and extremely premature, life's beautiful moments were about struggle and determination from the very beginning. Before she was even born, she had to face a ventilator, CPAP, and other life-saving devices. She had to be resuscitated on the 14th day, and since then, her everyday life has been dominated by health challenges.
Sarah fought hard for her life, was in critical condition for weeks and suffered from numerous infections. But her determination and willpower in the fight triumphed, and after more than 100 days, she was finally released from the hospital.