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Families

H. Emma and her family

Emma Hegedűs is a real little smiling Love Ball who will be 3 years old in May. She came into the world 3 months earlier than expected, weighing 800 grams, so that she could see her loving parents and the beauty of the world.
However, the early arrival came at a cost: he developed a stroke and, as a result, hydrocephalus, which required a shunt. Over the course of 1.5 years, his brain was operated on eight times due to shunt problems.

S. Máté and his family

Máté is a true little hero, born healthy and happy in April 2007. His first years of life were fine, but in 2021 his mother noticed that Máté's spine was curved. During post-COVID tests, a 20 cm long spinal cord tumor was discovered, which presented him and his family with serious challenges.
He underwent surgery in Szeged in April 2022. The 12-hour surgery was followed by three weeks of intensive care, and Máté was able to leave the Szeged New Clinic in June. His recovery continued at Bethesda Children's Hospital until October 2022, when he was transferred to OORI in Budakeszi to continue his rehabilitation.

M. Márk and his family

Márk was born on December 11, 2014, 8 months premature, and his life journey began with a quick home birth. The pregnancy and the first year passed without any problems, but over time, worrying changes began to appear. From the age of one, Márk's development slowed down, and a neurologist diagnosed him with hypoxia and developmental disorders.

M. Zselyke and her family

Zselyke's life presented her family with unique challenges when she was just 3 months old, when they started attending a developmental neurological clinic. Despite her motor organ problems and microcephaly, Zselyke works real miracles every day. Although she started crawling, climbing, sitting up and walking later, now, at 3 years old, she struggles with speech and movement, but with the help of the early developer, she is trying to catch up.

K. Marcell and his family

Marci developed similarly to his peers until he was 15 months old. He was already standing and walking independently at the age of 10 months. Then he received a vaccination, after which he started walking on his toes 3 weeks later, and within a few days he lost his ability to walk and at the same time his balance.
Their neurologist at the time diagnosed him with cerebral palsy. They sent Marc for an MRI, which showed signs of oxygen deprivation. This gave the neurologist an explanation for his suspicion.
In Marcin, the vaccination activated a little-known genetic disorder called Aicardi-Goutieres 7 syndrome. Marcell is currently participating in the first drug study in Austria, which his parents learned about through an American group.

B. Gergely and his family

Gergő was born completely healthy at the 40th week of pregnancy, after an uneventful pregnancy. In the initial period, there were no abnormalities, but later the health visitor noticed that there was a delay in his motor development. Despite this, the doctors declared him healthy until he was 17 months old, giving the family a wrong diagnosis.
However, the parents were not comfortable with the uncertainty, so they requested a full examination. The examinations revealed that Gergő may have suffered from a lack of oxygen at birth, which caused ventricular dilation. As a result, a shunt had to be implanted.

Levente F. and his family

Levente is an extremely persistent and determined 13-year-old boy who struggles every day to overcome the difficulties he faced early in his life and become a successful athlete. Although he was born healthy, he suffered a central nervous system injury and moderate hearing loss after being given an incorrect course of antibiotics. These two factors have had a significant impact on Levente's movement and daily life.

G. Csenge and his family

After an uneventful pregnancy, Csenge was born. After giving birth, the family noticed that parts of Csenge's body were starting to turn blue. The parents knew that something was wrong. Csenge was transferred to the Heim Pál Children's Hospital, where her circulation collapsed. The little girl was transferred to the Gottsegen György National Cardiovascular Institute, where she underwent immediate life-saving surgery for 12 hours! (Complex Pulmonary Vein Transposition). The surgery was successful, but after the prolonged medical intervention, her little body was put under a great strain and her condition remained critical! Kidney failure, mechanical ventilation! It was a very long and stressful period in the family's life. After 3 months, they were able to go home from the hospital with regular medication.

H. Sarah and her family

Sarah's life began with an extraordinary struggle when she was just 23 weeks old and came into the world. Born with twins and extremely premature, life's beautiful moments were about struggle and determination from the very beginning. Before she was even born, she had to face a ventilator, CPAP, and other life-saving devices. She had to be resuscitated on the 14th day, and since then, her everyday life has been dominated by health challenges.

Sarah fought hard for her life, was in critical condition for weeks and suffered from numerous infections. But her determination and willpower in the fight triumphed, and after more than 100 days, she was finally released from the hospital.

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