Bence K. and his family
Bence is turning 23 this year. Bence was born prematurely at six months, with an extremely low birth weight. He spent six months at the clinic in Debrecen. During those months, he suffered several critical episodes and fought for his life. At birth, it was established that he was blind in both eyes. During the five years he was predicted to live, Bence suffered several strokes, had his large intestine removed, and developed epilepsy. Bence still feeds from a bottle, as he has not developed the ability to chew and can therefore only be fed liquids. His vocalisation is nuanced; he can distinguish between pleasant and unpleasant situations and recognises family members. He has made significant progress in his mobility compared to his previous condition. Until the age of three, he was a helpless baby who could only lie down, but then, as a result of the interventions, his development began; he was worked with by a typhlopedagogue, a physiotherapist and a speech and language therapist. He is currently crawling and climbing.
Peter F. and his family
In August 2024, the family's life was turned upside down by an unexpected diagnosis: their nine-year-old son, Peti, was diagnosed with leukaemia. The news came as a shock to everyone. The family was split: the mother and her son stayed in Szeged for treatment, while the father stayed at home with the older child.
S. Mirkó and his family
Mirkó was born in 2015. He started life as a healthy-looking, happy little boy, and today he is a smiling nine-year-old child who faces an extremely serious disease with amazing courage: Duchenne muscular dystrophy.
Her family was diagnosed three years ago and since then they have been working hard to give Mirko the best possible future.
Levente L. and his family
In 2020, Levi was diagnosed with Duchenne muscular atrophy, then considered an incurable disease. However, in 2023, a new gene therapy, Elevidys, was developed that could significantly slow the progression of the disease. It's a treatment that we would like Levi to have, but it costs US$2.9 million.
D. Molli and his family
Molli is a premature baby and lives with cerebral palsy (CP), a central nervous system injury.
It arrived in August 2022, a little over 6 weeks earlier than expected.
Being a premature baby, all statuses are measured against his corrected - planned - date of birth, so although we were patient with his development, his unstable head and delayed interest in toys were a cause for some concern, so we booked him in for developmental neurology.
VII. Signing ceremony
Family Day II.
Gala evening
T. Greta and her family
Adél Gréta Takács was born on 4 October 2021 by emergency caesarean section. From the very first days she faced serious health challenges. A few weeks after her birth, it was discovered that she was born with Robertson's translocation Down syndrome. At three weeks old, she suffered a stroke while in hospital and was diagnosed with epilepsy a few months later.
Anna K. and her family
Anna was born premature in 2017. Since birth she has been living with cerebral palsy, which affects all four limbs with spasticity. Her life is about development - her family works every day to ensure she has the best possible development.