D. Rita and her family
Rita was born prematurely. No abnormalities were noticed during pregnancy, but after she was born they were faced with the fact that something was wrong. She may have been injured by some external influence in the early stages of pregnancy, which made her multiple disabled. She needs 24-hour supervision, is unable to take care of herself, and has epilepsy. We have been taking her to a day care center since she was 1 year old, where she participates in development and therapy. She is already 30 years old, and her family has raised her with great love and care since she was born.
Bence & Martin
Both of my children are affected by autism, and that is also a neurological problem.
My wife is home alone with the boys, and I can only do it in 4 hours.
to work.
Levente F. and his family
Levente was born with a very rare genetic disease (Walker Wartburg syndrome) which is a disorder affecting the brain, eyes and muscles. This disease cannot be cured. His condition can worsen at any time because he has excessive neurological incomprehension and epilepsy. He cannot speak or walk independently yet, he requires 24-hour supervision. Mentally he is at the level of a one-year-old.
At birth, doctors predicted he would live two years.
Abel and his family
My little son Abel will be five years old in January. Abel has Sturge-Weber syndrome (not hereditary) and Antithrombi. He is 3 months old.
At the age of 12, he had eye surgery for glaucoma, and 12 hours later he had epileptic seizures.
They checked in on him, he had a stroke.
Fanni and her family
Fanni was born healthy, everything was fine until she was 5 months old. She was diagnosed with epilepsy. She was in intensive care a lot because of the seizures. "Maternal intuition" They put her on medication, but the child still had seizures and often required oxygen, they didn't change her medication. And I told the neurologist that this couldn't go on like this, that the child was always having seizures, then the doctor said that we should go to Bethesda Children's Hospital. Which was the best decision.
Vitéz and his family
Vitéz lives with autism and severe intellectual disability. His siblings, ten-year-old Gellért, who struggles with ADHD, and 11-year-old Remény, who is always there to help him, do their best to support and love each other.
G. Pamela and her family
Pamela finished chemotherapy a year ago. Since then, she has been trying to
to live the same life as healthy children, to go back to kindergarten,
from which he graduated and will be going to school in September.
Laura and her family
My little girl, Laura, was born at term after an uneventful pregnancy. In the first few months, her development was as expected and there were no signs of concern. However, by the time she was three or four months old, it became apparent that she was not developing as well as her peers of a similar age.
Greg and his family
He was born prematurely at 34 weeks of gestation by cesarean section. From the very beginning, he struggled with many difficulties (feeding, movement, etc.), and because of these, he underwent various tests in several hospitals until he was 4 months old. Within the framework of such tests, he was referred to the University of Pécs for genetic testing, where he received the diagnosis of his disease after waiting for almost 3 years. He lives with 2 congenital, rare genetic diseases, which are accompanied by microcephaly (a brain developmental disorder - affecting speech, vision, and the movement center), metabolic and hormonal disorders.
Adin and his family
Ádin lives with Duchenne muscular dystrophy, a severe hereditary disease that causes a gradual weakening of the muscles. The gene therapy he received in 2024 has helped, but further treatments and huge financial resources are needed to maintain the condition so that Ádin can continue to have a chance to thrive.