Camilla and her family
Kamilla was born healthy in 2011. Around the age of 1.5, it began to become apparent that
He develops more slowly than his peers. He was diagnosed with autism at the age of 2.5 in Pécs.
chromosomal abnormality and it was determined that Kamilla had Dett syndrome. At the age of three, there was a major relapse in her condition.
F. Lénárd and his family
Lénárd had to deal with oxygen deprivation in the womb, and was born at 35 weeks. He had to be resuscitated immediately, was kept on a ventilator for 16 days, and required respiratory support for another 11 days. His infantile reflexes had not yet developed, so he was fed through a nasogastric tube until he was 5 months old, after which he was placed in a gastrostomy tube at 5 months old.
Bence & Martin
Both of my children are affected by autism, and that is also a neurological problem.
My wife is home alone with the boys, and I can only do it in 4 hours.
to work.
Levente F. and his family
Levente was born with a very rare genetic disease (Walker Wartburg syndrome) which is a disorder affecting the brain, eyes and muscles. This disease cannot be cured. His condition can worsen at any time because he has excessive neurological incomprehension and epilepsy. He cannot speak or walk independently yet, he requires 24-hour supervision. Mentally he is at the level of a one-year-old.
At birth, doctors predicted he would live two years.
Abel and his family
My little son Abel will be five years old in January. Abel has Sturge-Weber syndrome (not hereditary) and Antithrombi. He is 3 months old.
At the age of 12, he had eye surgery for glaucoma, and 12 hours later he had epileptic seizures.
They checked in on him, he had a stroke.
Fanni and her family
Fanni was born healthy, everything was fine until she was 5 months old. She was diagnosed with epilepsy. She was in intensive care a lot because of the seizures. "Maternal intuition" They put her on medication, but the child still had seizures and often required oxygen, they didn't change her medication. And I told the neurologist that this couldn't go on like this, that the child was always having seizures, then the doctor said that we should go to Bethesda Children's Hospital. Which was the best decision.
Vitéz and his family
Vitéz lives with autism and severe intellectual disability. His siblings, ten-year-old Gellért, who struggles with ADHD, and 11-year-old Remény, who is always there to help him, do their best to support and love each other.
G. Pamela and her family
Pamela finished chemotherapy a year ago. Since then, she has been trying to
to live the same life as healthy children, to go back to kindergarten,
from which he graduated and will be going to school in September.
Laura and her family
My little girl, Laura, was born at term after an uneventful pregnancy. In the first few months, her development was as expected and there were no signs of concern. However, by the time she was three or four months old, it became apparent that she was not developing as well as her peers of a similar age.
Greg and his family
He was born prematurely at 34 weeks of gestation by cesarean section. From the very beginning, he struggled with many difficulties (feeding, movement, etc.), and because of these, he underwent various tests in several hospitals until he was 4 months old. Within the framework of such tests, he was referred to the University of Pécs for genetic testing, where he received the diagnosis of his disease after waiting for almost 3 years. He lives with 2 congenital, rare genetic diseases, which are accompanied by microcephaly (a brain developmental disorder - affecting speech, vision, and the movement center), metabolic and hormonal disorders.