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Families

L. Narcissus and his family

Nárcisz 2006.08.13-án született. 8 hónaposan az elmaradt mozgásfejlődése miatt kivizsgálásra került sor, ahol SMA1 betegséget állapítottak meg nála. Ez egy genetikai eredetű izomsorvadás, ami az orvostudomány mai állása szerint nem gyógyítható, de szinten lehet tartani. 7 évesen Nárcisznak gégemetszése volt, ennek ellenére a gégekanüllel megtanult beszélni.

F. Véda and her family

Véda was born at 36 weeks by emergency cesarean section, due to undetected toxemia of pregnancy. She suffered from a lack of oxygen in the womb, and unfortunately suffered a brain hemorrhage on the 6th day after birth.

C. Hanna and her family

Life has been a struggle for Hanna, now 7, since birth. The little girl suffered from renal vein thrombosis in the womb, and 3 strokes at birth, as well as cerebral palsy and epilepsy. Her mother was told that her child would vegetate like a houseplant. The doctors practically gave up on her, but her mother and the family did not give up.

A. Krisztián and his family

Krisztián was diagnosed with Duchenne muscular dystrophy at the age of seven and a half. I could already see that something was wrong when I was 5. He couldn't walk up stairs, squat down, climb, and could barely walk a few meters on his own.
I took him to the local doctor, but they said he had clubfoot and a muscle strain! They took two years off our lives.

V. Ákos Máté & family

Ákos was born on September 5, 2021, at 31 weeks, prematurely. This is the first time in his life
his moments were also filled with struggle. On the second day, he suffered a severe stroke, which began a long period of rehabilitation. Margit Hospital newborn for three weeks
we were with him in his ward before we could take him home, and the series of intensive therapy treatments that have continued ever since began.

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