N. Jasmine and her family
Jasmine was born in 2010 with hip spica and hypotonic muscles. She and her mum have been going to regular rehabilitation sessions ever since. The hip dislocation was corrected by surgery, but over time it was discovered that she has an incurable muscle disease (Urlich muscular dystrophy), which is a constant deterioration.
István H. and his family
István was born at 24 weeks, weighing 600 gr. On the fourth day of life he suffered the most severe stroke. The resulting hydrocephalus kept him in intensive care for seven months. During this time he underwent several life-saving operations. All his premature infant illnesses were cured with severe psychomotor deficits. As a result, she has multiple disabilities: mobility impairment, moderate intellectual disability and visual impairment. He also has asthma, epilepsy, wears a shunt and eats mashed food.
F. Mira and family
Mira was born in December 2015 at 37 weeks' gestation, weighing 2880 grams and with an Apgar score of 9/10. A residual haemorrhage in her brain was detected at birth, so tests were started immediately. After a series of MRI, EEG and neurological tests, he was diagnosed with axial hypotonia, which significantly affected his motor development and psychomotor skills.
B. Bence and his family
On 19 January 2006, Bence was born as the fourth child. At the age of two months, he was admitted to hospital due to growth problems, where, after examination, he was diagnosed with cerebral palsy. Special institutions did not accept him, so he learned to walk at home. Over time, his increasingly difficult walking became painful. It turned out that he had bone fusion in his knees and was diagnosed with scoliosis. This is an abnormal lateral curvature of the spine caused by the vertebrae shifting and twisting on top of each other.
M. Diána and her family
Diána is a girl born in September 2015 who lives with a severe disability. She has limited mobility, was born with cleft palate and wears a shunt. She cannot drink independently and has difficulty feeding orally.
R. Hunor Álmos and his family
Hunor, who is 10 years old, has severe neurological problems and is severely limited in his mobility. The boy's daily life is full of significant challenges: he cannot walk on his own and even has difficulty speaking. His parents do everything they can to help him, trying to provide him with the best environment for his development and providing him with care.
N. Rajmond Brendon and family
N. Rajmond Brendon, or Rajmi as he is known to his family and friends, was born in 2013 as the third child in the family. For a long time, there was no sign of anything wrong with his health - he was just as happy and energetic a child as any other.
Kincső and her family
Kincső mindössze 1100 grammal, súlyos állapotban jött a világra. A centralizálódott keringése miatt sürgősségi császármetszéssel kellett világra segíteni, majd inkubátorba került és lélegeztetésre szorult. Bár rendkívül nehéz út állt előtte, már akkor bebizonyította, hogy igazi harcos: kevesebb mint két hónap alatt annyira megerősödött, hogy szülei hazavihették.
S. Szimonetta and her family
Szimonetta már születése óta olyan egészségügyi nehézségekkel él, amelyek meghatározzák mindennapjait. Kora gyermekkorában hypotonia, majd mentális retardáció, valamint szimptómás epilepszia miatt került folyamatos neurológiai ellenőrzés alá. Látásával is küzd: strabismus, valamint Bénulásos szindróma (G8390) szerepel a leleteiben. Ezek a betegségek együtt komoly kihívást jelentenek számára a tájékozódásban, a motiváció fenntartásában és a figyelem irányításában.
A. Áron and his family
Áron 2022-ben egy baleset következtében gerinctörést szenvedett. Az azonnali műtétet hosszas rehabilitáció és magántanulói státusz követte. Otthon egy teljesen új élethelyzettel kellett szembenéznie: a baráti körből kicsit kiesett, a lakást körülötte át kellett formálni egy kerekesszékkel is akadálymentes otthonná, melynek anyagi korlátai voltak, de a támogató közösségnek hála sikerült elkezdeni az új életet.