I. Lia and her family
It all started in May 2024. One morning, a small, hard lump appeared on Lia's body, which at first didn't seem worrying. She was taken to a doctor, who initially suspected a sting. But as the bump did not go away and grew larger over time, the doctor came to a different conclusion: a haemangioma, a benign tumour.
B. Gergely and his family
Gergő was born completely healthy at the 40th week of pregnancy, after an uneventful pregnancy. In the initial period, there were no abnormalities, but later the health visitor noticed that there was a delay in his motor development. Despite this, the doctors declared him healthy until he was 17 months old, giving the family a wrong diagnosis.
However, the parents were not comfortable with the uncertainty, so they requested a full examination. The examinations revealed that Gergő may have suffered from a lack of oxygen at birth, which caused ventricular dilation. As a result, a shunt had to be implanted.
Peter F. and his family
In August 2024, the family's life was turned upside down by an unexpected diagnosis: their nine-year-old son, Peti, was diagnosed with leukaemia. The news came as a shock to everyone. The family was split: the mother and her son stayed in Szeged for treatment, while the father stayed at home with the older child.
Levente F. and his family
Levente is an extremely persistent and determined 13-year-old boy who struggles every day to overcome the difficulties he faced early in his life and become a successful athlete. Although he was born healthy, he suffered a central nervous system injury and moderate hearing loss after being given an incorrect course of antibiotics. These two factors have had a significant impact on Levente's movement and daily life.
S. Mirkó and his family
Mirkó was born in 2015. He started life as a healthy-looking, happy little boy, and today he is a smiling nine-year-old child who faces an extremely serious disease with amazing courage: Duchenne muscular dystrophy.
Her family was diagnosed three years ago and since then they have been working hard to give Mirko the best possible future.
G. Csenge and his family
After an uneventful pregnancy, Csenge was born. After giving birth, the family noticed that parts of Csenge's body were starting to turn blue. The parents knew that something was wrong. Csenge was transferred to the Heim Pál Children's Hospital, where her circulation collapsed. The little girl was transferred to the Gottsegen György National Cardiovascular Institute, where she underwent immediate life-saving surgery for 12 hours! (Complex Pulmonary Vein Transposition). The surgery was successful, but after the prolonged medical intervention, her little body was put under a great strain and her condition remained critical! Kidney failure, mechanical ventilation! It was a very long and stressful period in the family's life. After 3 months, they were able to go home from the hospital with regular medication.
D. Molli and his family
Molli is a premature baby and lives with cerebral palsy (CP), a central nervous system injury.
It arrived in August 2022, a little over 6 weeks earlier than expected.
Being a premature baby, all statuses are measured against his corrected - planned - date of birth, so although we were patient with his development, his unstable head and delayed interest in toys were a cause for some concern, so we booked him in for developmental neurology.
H. Sarah and her family
Sarah's life began with an extraordinary struggle when she was just 23 weeks old and came into the world. Born with twins and extremely premature, life's beautiful moments were about struggle and determination from the very beginning. Before she was even born, she had to face a ventilator, CPAP, and other life-saving devices. She had to be resuscitated on the 14th day, and since then, her everyday life has been dominated by health challenges.
Sarah fought hard for her life, was in critical condition for weeks and suffered from numerous infections. But her determination and willpower in the fight triumphed, and after more than 100 days, she was finally released from the hospital.
B. Joel and his family
Bari Anton Joel was born on 22 July 2017 in Eger, Hungary. Soon after his birth, it became clear that he was a special boy: he had Down's syndrome. The first period was accompanied by many medical examinations, development and therapies, which were carried out at the Early Development Centre of the Down Outpatient Clinic in Budapest. Although the early days were filled with anxiety, his family stood by him with tremendous love and devotion throughout.
I. Buttercup and her family
Buttercup developed beautifully after birth, there was nothing to indicate that she was not healthy.
At the age of 7 months, she had a febrile seizure and was admitted to the Children's Clinic. She was diagnosed with epilepsy. The tests began. Boglárka was one and a half years old when a genetic test diagnosed her with Wolf Hirshorn syndrome.
Wolf-Hirschhorn syndrome (WHS, 4p-) is a genetic disorder caused by a gene defect on the short arm of chromosome 4 or a translocation from it to another chromosome.