Z. Hanna and her family
Hanna is a smiling, cheerful seven-year-old girl. However, behind her smile lies a struggle that rightfully places her among the greatest warriors. This fight is not for a title or a cup, but
for his life.
M. Kiara and her family
Kiara's struggle began in her mother's womb. At the 18-week ultrasound, she was diagnosed with aortic stenosis. After the diagnosis, they were taken to Budapest's Szent János Hospital, where the cardiologist professor told the parents what to expect after the examination. – 50-50%, that there could be something wrong with her, but it will only be revealed at birth.
The tests continued with a placental biopsy to screen for the most serious genetic diseases. Mónika was given great news after the test: she was carrying a completely healthy baby girl. Kiara was born by scheduled cesarean section and her heart was working properly. After the tests, they were discharged from the hospital and they could finally go home. The baby girl developed completely normally until she was 3 months old.
D. Attila and his family
Attila was born at 25 weeks due to gestational toxemia, weighing 54 grams. During his birth, it was questionable whether he would survive the cesarean section. Attila wanted to live and fought!
He spent months in an incubator, I cried a lot because I felt sorry for him. The PIC nurses always said: mom, don't cry, the child was born alive, he wants to live, there's no need to feel sorry for him.
M. László and his family
Lacika is a 6-year-old, smiling, cheerful little boy who came into the world on a sunny August day. But Lacika's story is unique and funny, as he has been battling an intrauterine viral infection, cytomegalovirus, since birth. He was born at Uzsoki Hospital, and from the very beginning it was indicated that his muscle tone was tight and that he would need physical therapy in the future. Over the past 6 years, Lacika and his family have faced many challenges. The little boy's life is full of gymnastics, therapy, and struggles. Cytomegalovirus caused a serious movement disorder, and many therapies and development methods have become a daily routine in Lacika's life.
N. Alexander and his family
Alex was born at 39 weeks of gestation, completely healthy. During the tests, it was revealed that one of the horns of the ventricle was wider than the others, but the doctors reassured the mother and grandmother that this would completely regress by the time he was 1 month old.
Melinda and her family
Melinda was a breech baby and was born naturally at 33 weeks. The doctors forced a natural birth instead of a cesarean section. As a result, Melinda suffered from a lack of oxygen, which led to a stroke. She had to be resuscitated after birth.
The little girl was released home after 3 weeks, but the parents were not informed about their child's illness. At the age of 1, they took Melinda for a check-up, when they learned that their daughter suffered from a neurological and physical disability. Their daughter will neither be able to speak nor walk. The family was sent for genetic testing, which came back negative.
S. Elizabeth and her family
Elizabeth was born in 2023 as a completely healthy baby. However, in the 90th minute of the golden hour, she suddenly stopped breathing. Her parents immediately notified the nurse, who immediately took her away and began resuscitation. The first attempt was unsuccessful, only the second time, with mechanical assistance, managed to save her life. Unfortunately, by then she had developed a severe oxygen deficiency, so she was transferred to Semmelweis University that same day, where she was hibernated for 72 hours. Despite all this, the doctors determined that approximately 60% of her brain was damaged.
N. Máté and his family
Máté was born with a very rare genetic disorder that affects the muscles of the body. On the 5th day of his birth, his parents noticed that he could not hold his tiny head properly. They visited their family doctor with their observations, who reassured them that Máté would only develop in a few days. Unfortunately, this was not the case. My 4-month-old had already become so visible that his neck was really weak and he was lagging behind in large movements. He could not lift his head. Then, on medical advice, we were admitted to a developmental center. He was taken to private therapies with him: Dévény and Tsmt exercises. Unfortunately, it did not bring much success to the family's life. At 11 months old, he was seen by a neurologist specializing in muscle research, who diagnosed mild neck and shoulder girdle hypotonia. His parents were not reassured by the diagnosis and a full neurological examination was initiated in Hungary, in addition to therapies. The neurological examination did not give an accurate diagnosis of little Máté's condition.
Greg and his family
Gergő was born on June 4, 2020 in Szeged. At the age of 4 months, he was diagnosed with Duchenne Muscular Dystrophy (DMD), a disease that causes progressive muscle wasting. At that time, there was no cure, but in 2023, Elevidys gene therapy was approved, so we started the collection to save our little boy's life.
P. David and his family
Dávid was born a premature baby boy. At birth, he suffered from intrauterine oxygen deprivation, followed by a grade 2 cerebral hemorrhage. His physical development as an infant was weaker than average. In 2022, they managed to move to Hungary from Ukraine on a voluntary basis for the sake of their child, as Dávid needed developments that they did not have the opportunity to have in Ukraine.