Villő and his family
Villő was born a perfect, beautiful, completely healthy little girl. She developed completely healthy, according to her age. Her mother had all the happiness she could wish for. During her first sleepover in kindergarten, she had an epileptic seizure. Neurology, medications, tests, weeks spent in the hospital, alternative therapies, and little Villő's condition not only did not improve, but it got worse and worse.
Lynette and her family
Linett was born by emergency cesarean section at 29 weeks along with her siblings.
The 3 children developed beautifully, everything seemed to be fine. They were 6 months old when her parents noticed that Linett was lagging behind in terms of movement compared to her siblings. Linett cried a lot and was often inconsolable! The doctors reassured us that there was nothing wrong, but our mother's intuition said otherwise, so we visited our first Dévényes and the early development house, unfortunately we did not start on the path of development, so we visited our current Dévényes at the age of 1, who has been a part of our lives ever since and we are very grateful to Him!
Z. Hanna and her family
Hanna is a smiling, cheerful seven-year-old girl. However, behind her smile lies a struggle that rightfully places her among the greatest warriors. This fight is not for a title or a cup, but
for his life.
M. Kiara and her family
Kiara's struggle began in her mother's womb. At the 18-week ultrasound, she was diagnosed with aortic stenosis. After the diagnosis, they were taken to Budapest's Szent János Hospital, where the cardiologist professor told the parents what to expect after the examination. – 50-50%, that there could be something wrong with her, but it will only be revealed at birth.
The tests continued with a placental biopsy to screen for the most serious genetic diseases. Mónika was given great news after the test: she was carrying a completely healthy baby girl. Kiara was born by scheduled cesarean section and her heart was working properly. After the tests, they were discharged from the hospital and they could finally go home. The baby girl developed completely normally until she was 3 months old.
D. Attila and his family
Attila was born at 25 weeks due to gestational toxemia, weighing 54 grams. During his birth, it was questionable whether he would survive the cesarean section. Attila wanted to live and fought!
He spent months in an incubator, I cried a lot because I felt sorry for him. The PIC nurses always said: mom, don't cry, the child was born alive, he wants to live, there's no need to feel sorry for him.
M. László and his family
Lacika is a 6-year-old, smiling, cheerful little boy who came into the world on a sunny August day. But Lacika's story is unique and funny, as he has been battling an intrauterine viral infection, cytomegalovirus, since birth. He was born at Uzsoki Hospital, and from the very beginning it was indicated that his muscle tone was tight and that he would need physical therapy in the future. Over the past 6 years, Lacika and his family have faced many challenges. The little boy's life is full of gymnastics, therapy, and struggles. Cytomegalovirus caused a serious movement disorder, and many therapies and development methods have become a daily routine in Lacika's life.
N. Alexander and his family
Alex was born at 39 weeks of gestation, completely healthy. During the tests, it was revealed that one of the horns of the ventricle was wider than the others, but the doctors reassured the mother and grandmother that this would completely regress by the time he was 1 month old.
M. Zselyke and her family
Zselyke's life presented her family with unique challenges when she was just 3 months old, when they started attending a developmental neurological clinic. Despite her motor organ problems and microcephaly, Zselyke works real miracles every day. Although she started crawling, climbing, sitting up and walking later, now, at 3 years old, she struggles with speech and movement, but with the help of the early developer, she is trying to catch up.
Adam M. and his family
Adam was born in August 2015 in Tiszaújlak, Transcarpathia. In the first three years of his life he developed nicely, without any problems, everything was according to his age.
But in 2019, just before her fourth birthday, she had unexpected difficulties: after a mild cold, her parents noticed that she was having trouble with her stairs. Genetic tests revealed a shocking result - Adam was found to suffer from a rare, serious genetic disorder, Duchenne muscular dystrophy, which was thought to be incurable at the time.
K. Marcell and his family
Marci developed similarly to his peers until he was 15 months old. He was already standing and walking independently at the age of 10 months. Then he received a vaccination, after which he started walking on his toes 3 weeks later, and within a few days he lost his ability to walk and at the same time his balance.
Their neurologist at the time diagnosed him with cerebral palsy. They sent Marc for an MRI, which showed signs of oxygen deprivation. This gave the neurologist an explanation for his suspicion.
In Marcin, the vaccination activated a little-known genetic disorder called Aicardi-Goutieres 7 syndrome. Marcell is currently participating in the first drug study in Austria, which his parents learned about through an American group.