H. Dávid Péter and his family
David has a serious illness, leukaemia. David has been part of our „Adopt a family” programme for a year. Now they are looking for support again - they still need help.
David is also currently facing serious health difficulties. Although he seems to be better at first glance, he has frequent nosebleeds, muscle cramps and increased fatigue. He has regular check-ups at the Pesti úti hospital in Budapest and has now been referred for further tests. However, they will have to wait for the appointments. Any minor cold or weakness is almost immediately accompanied by a fever.
K. Eszter and her family
Eszter was born from an uneventful pregnancy, and everything was fine in the first months. However, when she was 4 months old, her mother noticed that Eszter was not moving or developing properly. As a result of a genetic blood test, it was revealed that Eszter suffers from SMA type 1.
M. Dorina and her family
Dorina was raised by foster parents for 5 years, where she experienced a lot of stress and great heartbreak in her life. As a result of the mental strain, she developed epilepsy. On April 15, 2022, her mother regained custody and has been under her supervision ever since. They go to a neurologist for a check-up every year.
András K. and his family
Andriska was diagnosed with heart failure and a brain aneurysm at week 19.
Continuous monitoring was started to prevent the little boy from having a stroke. At 37 weeks Andriska was born. He was admitted to intensive care after birth and was operated on the next day. It was necessary to implant a shunt to drain the brain water.
The last surgery was in November 2024, but the mr scan showed that this surgery has to be repeated every year or every six months.
W. Flora and her family
Flóra was born with bilateral clubfoot in 2013. After endless treatments and persistent research, she was diagnosed with the rare genetic disorder Charcot-Marie-Tooth type 2C, which causes her to use a wheelchair. She attends after-school development sessions 3-4 times a week.
Bence K. and his family
Bence ebben az évben tölti a 23. életévét. Bence koraszülöttként hat hónaposan, rendkívül alacsony súllyal jött a világra. A debreceni klinikán töltött hat hónapot. A hónapok alatt többször volt krízis helyzetben, az életéért harcolt. Születésekor megállapították, hogy mindkét szemére vak. Bence a neki jósolt 5 év alatt több agyvérzésen esett át, kivezették a vastagbelét és epilepszia is kialakult nála. Bence jelenleg is cumisüvegből eszik, mivel nem alakult ki nála a rágás így csak folyékony formában etethető. A hangadása differenciált, különbséget tud tenni kellemes és kellemetlen helyzetek között, megismeri a családtagokat. Mozgásában sokat fejlődött magához viszonyítva. Három éves koráig fekvő tehetetlen baba volt, majd a fejlesztések hatására elindult a fejlődés, tiflopedagógus, gyógytornász és logopédus foglalkozott vele. Jelenleg kúszik, mászik.
Evelin Bagyarik and her family
On May 28, 2021, Evelin (then 16 years old) was in a car accident. While sitting in the back seat of the car, a car traveling at high speed crashed into them from the side, Evelin was thrown out of the car. She fell onto the concrete and suffered a very serious head injury. That night in the hospital, the doctors said that she would not survive. Then the parents had to prepare for the farewell. Miraculously, Evelin survived the night. After months of struggle, they were able to stabilize her condition. Evelin was in a coma for 4 months
Levente L. and his family
In 2020, Levi was diagnosed with Duchenne muscular atrophy, then considered an incurable disease. However, in 2023, a new gene therapy, Elevidys, was developed that could significantly slow the progression of the disease. It's a treatment that we would like Levi to have, but it costs US$2.9 million.
S. Leopold and his family
Leopold was born prematurely in 2019. For a long time, it was not known why he was not developing like a normal child, until he was diagnosed with Prader-Willi syndrome at the age of three. This is a rare genetic disease that causes a lack of feeling full, so Leopold is always hungry. The disease has many other symptoms, so his parents need to take extra care of him.
T. Greta and her family
Adél Gréta Takács was born on 4 October 2021 by emergency caesarean section. From the very first days she faced serious health challenges. A few weeks after her birth, it was discovered that she was born with Robertson's translocation Down syndrome. At three weeks old, she suffered a stroke while in hospital and was diagnosed with epilepsy a few months later.