H. Emma and her family
Emma Hegedűs is a real little smiling Love Ball who will be 3 years old in May. She came into the world 3 months earlier than expected, weighing 800 grams, so that she could see her loving parents and the beauty of the world.
However, the early arrival came at a cost: he developed a stroke and, as a result, hydrocephalus, which required a shunt. Over the course of 1.5 years, his brain was operated on eight times due to shunt problems.
Anna K. and her family
Anna was born premature in 2017. Since birth she has been living with cerebral palsy, which affects all four limbs with spasticity. Her life is about development - her family works every day to ensure she has the best possible development.
S. Máté and his family
Máté is a true little hero, born healthy and happy in April 2007. His first years of life were fine, but in 2021 his mother noticed that Máté's spine was curved. During post-COVID tests, a 20 cm long spinal cord tumor was discovered, which presented him and his family with serious challenges.
He underwent surgery in Szeged in April 2022. The 12-hour surgery was followed by three weeks of intensive care, and Máté was able to leave the Szeged New Clinic in June. His recovery continued at Bethesda Children's Hospital until October 2022, when he was transferred to OORI in Budakeszi to continue his rehabilitation.
H. Tibor Erik and his family
Erik Tibor H. was a 5.5-year-old, lively, healthy boy until he was diagnosed with Acute Myeloid Leukaemia in October 2024. On that day, he underwent bone marrow sampling under anaesthesia and two units of blood were drawn for low haemoglobin.
M. Márk and his family
Márk was born on December 11, 2014, 8 months premature, and his life journey began with a quick home birth. The pregnancy and the first year passed without any problems, but over time, worrying changes began to appear. From the age of one, Márk's development slowed down, and a neurologist diagnosed him with hypoxia and developmental disorders.
D. Dominik and his family
Dominik was born in January 2020, at 25 weeks gestation, as an extremely premature baby with a severe stroke and oxygen deprivation. In the first weeks of his life, he underwent several major surgeries: a section of his small intestine was removed, he had laser eye surgery and a hernia in his inguinal hernia. Doctors say he may never meet anyone and will only be able to lie down.
P. Petra, Tamás and family
The Pihokker family is raising two children with long-term illnesses and special educational needs. The family's daily life is characterised by the organisation, provision and financing of ongoing development and therapies.
Their youngest child, Tamás, now 2.5 years old, was born at 35 weeks with an Apgar score of 6/8 due to a CTG anomaly. He spent the first weeks of his life in the NIC/PIC ward. His motor development lagged behind his peers at an early age and he was diagnosed with generalised hypotonia. In November 2024, genetic testing confirmed that Thomas was affected by the infantile onset form of Charcot-Marie-Tooth (CMT 3) disease, which underlies his movement problems. He is now able to sit steadily, crawl regularly, cling to furniture, stand upright, and with the help of a rolling walker and AFO, he is becoming more adept at walking as he develops - but he cannot yet walk independently.
Peter L. and his family
Peti has recently been diagnosed with Duchenne muscular dystrophy. This is a serious, rare disease that causes gradual muscle weakness, followed by muscle atrophy, eventually leading to complete muscle breakdown. A special gene therapy could be available abroad that could stop this process, but it would cost around 1.3 billion forints.
U. Alex and his family
Alex will be one year old in October. The investigation was triggered by a prolonged jaundice that has not gone away even after two months of age. Blood tests showed abnormally high liver function values. The local paediatrician was thorough and sent Alex for further tests at the hepatology department. There, his CK levels were measured twice - both times they were found to be extremely high: first 19,000 and then 11,000.
Csaba Sz. and his family
márciusában kezdődött a történetük egy hasfájással, ami miatt bevitték a kisfiukat a nyíregyházi kórházba. Innen már mentővel tovább is szállították Debrecenbe, ahol a vizsgálatok során kiderült, hogy a kisfiú bal oldali veséjében daganat van, amely a mellkasban és a hasban is több helyen megtalálható.