L. Liliána and her family
Liliána was born with cleft lip and cleft palate on 06.09.2018, as the youngest child. She has a chromosomal abnormality, Dandy Walker syndrome. She wears hearing aids and glasses due to bilateral sensorineural hearing loss. He cannot walk, but can sit independently and can even get around sitting up. He loves to explore the world around him, to discover wonders. He can pull himself up and climb on the sofa by himself. This is also due to the fact that he attends cognitive and movement development sessions several times a week.
B. Abel and his family
Ábel has recently been diagnosed with Duchenne muscular dystrophy. This is a severe, rare genetic disease that causes gradual muscle weakness, followed by complete muscle atrophy, eventually leading to total muscle wasting. There is a special gene therapy abroad that could stop this process, but it costs up to 1.3 billion forints.
Noémi M. and her family
Noémi is a special 3-year-old girl whose start in life has not been easy. She is the second child in the family, alongside a healthy 14-year-old brother. Noémi suffered a severe stroke at birth which left her with permanent damage, including brain atrophy. The brain injury also caused her to suffer from epileptic seizures, which she is trying to control with medication.
F. Döme and his family
Döme is a 2-year-old boy born from a compromised pregnancy at 28 weeks, by emergency caesarean section. He was born at just 990 grams and 38 cm. He was oxygen deprived as a foetus and was on a ventilator for some time after birth. He required oxygen until 10 weeks of age due to mild bronchopulmonary dysplasia (BPD). A cranial ultrasound revealed that he had suffered a grade II and III stroke and required ventilation again at two weeks of age due to enterococcal sepsis.
Mi. Mark and his family
Márk was born at 37 weeks weighing 1680 grams and is now 11 years old. He is growing up in a loving family with his helpful grandmothers and sister Vivien. One month after his birth, it became clear that he had Down syndrome, and from then on, problems and illnesses followed one after another. His sensory organs are affected; his hearing and vision, and he also has thyroid problems and lives with a physical disability. Due to his illnesses, Márk needs constant supervision and assistance. His mother cooks for him every day, and he enjoys eating her meals. He attends school in Kiskunhalas for four hours a day, which his family pays for.
István H. and his family
István was born at 24 weeks, weighing 600 gr. On the fourth day of life he suffered the most severe stroke. The resulting hydrocephalus kept him in intensive care for seven months. During this time he underwent several life-saving operations. All his premature infant illnesses were cured with severe psychomotor deficits. As a result, she has multiple disabilities: mobility impairment, moderate intellectual disability and visual impairment. He also has asthma, epilepsy, wears a shunt and eats mashed food.
R. Hunor Álmos and his family
Hunor, who is 10 years old, has severe neurological problems and is severely limited in his mobility. The boy's daily life is full of significant challenges: he cannot walk on his own and even has difficulty speaking. His parents do everything they can to help him, trying to provide him with the best environment for his development and providing him with care.
B. Bence and his family
On 19 January 2006, Bence was born as the fourth child. At the age of two months, he was admitted to hospital due to growth problems, where, after examination, he was diagnosed with cerebral palsy. Special institutions did not accept him, so he learned to walk at home. Over time, his increasingly difficult walking became painful. It turned out that he had bone fusion in his knees and was diagnosed with scoliosis. This is an abnormal lateral curvature of the spine caused by the vertebrae shifting and twisting on top of each other.
N. Rajmond Brendon and family
N. Rajmond Brendon, or Rajmi as he is known to his family and friends, was born in 2013 as the third child in the family. For a long time, there was no sign of anything wrong with his health - he was just as happy and energetic a child as any other.
F. Mira and family
Mira was born in December 2015 at 37 weeks' gestation, weighing 2880 grams and with an Apgar score of 9/10. A residual haemorrhage in her brain was detected at birth, so tests were started immediately. After a series of MRI, EEG and neurological tests, he was diagnosed with axial hypotonia, which significantly affected his motor development and psychomotor skills.