Márk a 37 hétre 1680 grammal született, most 11 éves. Szerető családban, mindenben segítőkész nagymamákkal és testvérével Viviennel nevelkedik. Születése után 1 hónappal derült ki, hogy Down szindrómás, onnantól sorban jöttek a problémák, betegségek. Érintettek az érzékszervei; a hallása, látása, emellett pajzsmirigyével is gond van, és mozgássérültként éli mindennapjait. Márk betegségei miatt folyamatos felügyeletre, segítségre szorul, édesanyja mindennap főz neki, amit szívesen elfogyaszt. Kiskunhalasra jár iskolába napi 4 órára, melynek költségét a családja fizeti.

Döme egy 2 éves kisfiú, aki veszélyeztetett terhességből született a 28. héten, sürgősségi császármetszéssel. Mindössze 990 grammal és 38 cm-rel jött a világra. Magzati korban oxigénhiányos állapotba került, és a születését követően egy ideig lélegeztetőgépen volt. Enyhe fokú bronchopulmonalis dysplasia (BPD) miatt 10 hetes koráig oxigénre volt szüksége. Koponyaultrahang során derült ki, hogy II. és III. fokú agyvérzést szenvedett el, majd kéthetes korában Enterococcus szepszis miatt újra lélegeztetést igényelt.

Noémi egy különleges 3 éves kislány, akinek az életkezdete nem volt egyszerű. Ő a család második gyermeke, egy 14 éves egészséges fiú testvére mellett. Noémi születésekor súlyos agyvérzést szenvedett, ami maradandó károsodásokat okozott nála, többek között agysorvadást. Az agyi sérülés következtében epilepsziás rohamai is voltak, melyeket gyógyszeres kezeléssel igyekeznek kordában tartani.

Liliána ajak és teljes szájpadhasadékkal született 2018.09.06-án, legkisebb gyermekként. Kromoszóma rendellenessége, Dandy Walker szindrómája van. Kétoldali nagyfokú idegi hallás károsodása okán hallókészüléket visel, mellette szemüveget hord. Nem tud járni, de önállóan tud ülni, sőt ülve közlekedni. Szereti felfedezni a körülötte lévő világot, csodákat. A kanapénál egyedül felhúzza magát, és felmászik rá. Ez annak is köszönhető, hogy heti többszöri alkalommal járnak kognitív és mozgás fejlesztésekre.

márciusában kezdődött a történetük egy hasfájással, ami miatt bevitték a kisfiukat a nyíregyházi kórházba. Innen már mentővel tovább is szállították Debrecenbe, ahol a vizsgálatok során kiderült, hogy a kisfiú bal oldali veséjében daganat van, amely a mellkasban és a hasban is több helyen megtalálható.

Alex októberben lesz egy éves. A kivizsgálás egy elhúzódó sárgaság miatt indult el, amely még két hónapos kora után sem múlt el. A vérvételeken a májfunkciós értékek kórosan magasak voltak. A helyi gyermekorvos alapos volt, és további vizsgálatokra küldte Alexet a hepatológiára. Ott kétszer is megmérték a CK-értékeket – mindkét alkalommal extrém magas értékeket találtak: először 19.000, majd 11.000 volt az eredmény.

Petiről nemrég derült ki, hogy Duchenne-féle izomsorvadásban szenved. Ez egy súlyos, ritka betegség, amely fokozatos izomgyengeséggel, majd az izmok elsorvadásával jár, végül teljes leépüléshez vezet. Külföldön elérhető lenne egy speciális génterápia, amely képes lenne megállítani ezt a folyamatot, ám ennek költsége megközelíti az 1,3 milliárd forintot.

Pihokker család két, tartósan beteg és sajátos nevelési igényű kisgyermeket nevel. A család életét nap mint nap meghatározza a folyamatos fejlesztések és terápiák szervezése, biztosítása és finanszírozása.
Kisebbik gyermekük, a most 2,5 éves Tamás, a 35. hétre született meg, 6/8-as Apgar-értékkel, CTG-anomália miatt. Életének első heteit a NIC/PIC osztályon töltötte. Mozgásfejlődése már korán elmaradt kortársaitól, és generalizált hipotóniát diagnosztizáltak nála. 2024 novemberében a genetikai vizsgálat igazolta, hogy Tamás a Charcot–Marie-Tooth (CMT 3) betegség csecsemőkori indulási formájában érintett, ami a mozgásproblémái mögött áll. Jelenleg stabilan meg tud ülni, szabályosan mászik, bútorok mellett kapaszkodva feláll, és guruló járókeret segítségével, valamint AFO-val már egyre ügyesebben közlekedik a fejlesztések során – de önállóan még nem tud járni.

Dávid súlyos betegséggel, leukémiával küzd. Dávid már egy évig részese volt a „Fogadj örökbe egy családot!” programunknak. Most ismét támogatóra várnak – a segítségre ugyanis továbbra is nagy szükségük van.
Dávid jelenleg is komoly egészségügyi nehézségekkel küzd. Bár első ránézésre jobban van, gyakoriak nála az orrvérzések, izomgörcsök, fokozott fáradékonyság. A budapesti Pesti úti kórházba jár rendszeres kontrollokra, és most újabb vizsgálatokra kapott beutalókat. Az időpontokra azonban várniuk kell. Minden kisebb megfázás, gyengeség szinte azonnal lázzal jár nála.

Molli korababa és cerebrális parézissel (CP), vagyis központi idegrendszeri sérüléssel él.
2022. augusztusában, kicsit több, mint 6 héttel érkezett korábban a vártnál.
Korababa lévén neki minden státuszt a korrigált – tervezett születési idejéhez mérnek, így habár türelmesek voltunk a fejlődését illetően, a labilis fejtartása és a megkésett érdeklődése a játékok iránt némi aggodalomra adtak okot, ezért bejelentkeztünk fejlődésneurológiára.

Mirkó 2015-ben született. Egy egészségesnek tűnő, vidám kisfiúként kezdte életét, ma pedig egy kilencéves mosolygós gyermek, aki elképesztő bátorsággal néz szembe egy rendkívül súlyos betegséggel: Duchenne-féle izomsorvadással él.
Családja három évvel ezelőtt kapta meg a diagnózist, és azóta minden erejükkel azon dolgoznak, hogy Mirkó számára megteremtsék a lehető legjobb jövőt.

2024 augusztusában a család életét egy váratlan diagnózis forgatta fel: a mindössze kilenc éves kisfiuknál, Petinél leukémiát állapítottak meg. A hír mindenkit sokként ért. A család kettészakadt: az édesanya és kisfia Szegeden maradtak a kezelések miatt, míg az édesapa otthon, a nagyobb gyermekkel.

Minden 2024 májusában kezdődött. Egy reggel apró, kemény dudor jelent meg Lia testén, ami eleinte nem tűnt aggasztónak. Orvoshoz vitték, aki kezdetben csípésre gyanakodott. Ám mivel a dudor nem múlt el, sőt, idővel egyre nagyobb lett, az orvos más véleményre jutott: hemangioma, egy jóindulatú daganat lehetett a diagnózis.

Ádám 2015 augusztusában született Tiszaújlakon, Kárpátalján. Élete első három évében szépen, problémamentesen fejlődött, minden a korának megfelelően alakult.
2019-ben, negyedik születésnapja előtt azonban váratlan nehézségek jelentkeztek: egy enyhe megfázás után szülei észrevették, hogy gondja van a lépcsőzéssel. A genetikai vizsgálatok megdöbbentő eredményt hoztak – kiderült, hogy Ádám egy ritka, súlyos, és akkor még gyógyíthatatlannak tartott genetikai betegségben, a Duchenne-féle izomdisztrófiában szenved.

Dominik a 2020 januárjában, a 25. terhességi héten született extrém koraszülöttként, súlyos agyvérzéssel, oxigénhiánnyal. Életének első heteiben több komoly műtéten esett át: eltávolították vékonybele egy szakaszát, lézeres szemműtétet kapott, és lágyéksérvet is operáltak nála. Az orvosok szerint talán sosem fog megismerni senkit, és csak feküdni lesz képes.

H. Tibor Erik egy 5,5 éves, életvidám, egészséges kisfiú volt, mígnem 2024. októberében Akut Myeloid leukémiát diagnosztizáltak nála. Aznap altatásban csontvelő-mintavételre került sor, valamint két egység vért is kapott alacsony hemoglobinszint miatt.

Anna 2017-ben érkezett a világra, koraszülöttként. Születése óta cerebralis paresissel él, amely mind a négy végtagját érinti spaszticitással. Az ő élete a fejlődésről szól – családja minden nap azon dolgozik, hogy számára a lehető legjobb fejlesztéseket biztosítsa.

Takács Adél Gréta 2021. október 4-én született sürgősségi császármetszéssel. Az első napoktól kezdve komoly egészségi kihívásokkal kellett szembenéznie. Pár héttel születése után derült ki, hogy Robertson-féle transzlokációs Down-szindrómával jött világra. Háromhetes korában agyvérzést kapott a kórházi kezelések alatt, majd néhány hónappal később epilepsziát diagnosztizáltak nála.

2020-ban Levi-nél Duchenne féle izomsorvadást diagnosztizáltak, ami akkor kezelhetetlen betegségnek számított. Azonban 2023-ban megjelent egy új génterápia, az Elevidys, amely jelentős mértékben lassíthatja a betegség progresszióját. Ezt a kezelést szeretnénk, hogy Levi is megkaphassa, de a terápia költsége 2,9 millió USD.

Bence ebben az évben tölti a 23. életévét. Bence koraszülöttként hat hónaposan, rendkívül alacsony súllyal jött a világra. A debreceni klinikán töltött hat hónapot. A hónapok alatt többször volt krízis helyzetben, az életéért harcolt. Születésekor megállapították, hogy mindkét szemére vak. Bence a neki jósolt 5 év alatt több agyvérzésen esett át, kivezették a vastagbelét és epilepszia is kialakult nála. Bence jelenleg is cumisüvegből eszik, mivel nem alakult ki nála a rágás így csak folyékony formában etethető. A hangadása differenciált, különbséget tud tenni kellemes és kellemetlen helyzetek között, megismeri a családtagokat. Mozgásában sokat fejlődött magához viszonyítva. Három éves koráig fekvő tehetetlen baba volt, majd a fejlesztések hatására elindult a fejlődés, tiflopedagógus, gyógytornász és logopédus foglalkozott vele. Jelenleg kúszik, mászik.

Andriskánál a 19. héten szív elégtelenséget és agyi aneurysma diagnosztizáltak.
Folyamatos megfigyelés indult, nehogy agyvérzést kapjon a kisfiú. 37.-dik héten megszületett Andriska. Születése után intenzív osztályra került és másnap már megműtötték. Szükség volt egy shunt beültetésére is hogy elvezessék az agyvizet.
2024. Novemberében volt az utolsó műtét, viszont az mr vizsgálaton kiderült hogy ezt a műtétet ismételni kell évente vagy félévente.

Dorina was raised by foster parents for 5 years, where she experienced a lot of stress and great heartbreak in her life. As a result of the mental strain, she developed epilepsy. On April 15, 2022, her mother regained custody and has been under her supervision ever since. They go to a neurologist for a check-up every year.

Eszter was born from an uneventful pregnancy, and everything was fine in the first months. However, when she was 4 months old, her mother noticed that Eszter was not moving or developing properly. As a result of a genetic blood test, it was revealed that Eszter suffers from SMA type 1.

Buttercup developed beautifully after birth, there was nothing to indicate that she was not healthy.
At the age of 7 months, she had a febrile seizure and was admitted to the Children's Clinic. She was diagnosed with epilepsy. The tests began. Boglárka was one and a half years old when a genetic test diagnosed her with Wolf Hirshorn syndrome.

Wolf-Hirschhorn syndrome (WHS, 4p-) is a genetic disorder caused by a gene defect on the short arm of chromosome 4 or a translocation from it to another chromosome.

Sarah's life began with an extraordinary struggle when she was just 23 weeks old and came into the world. Born with twins and extremely premature, life's beautiful moments were about struggle and determination from the very beginning. Before she was even born, she had to face a ventilator, CPAP, and other life-saving devices. She had to be resuscitated on the 14th day, and since then, her everyday life has been dominated by health challenges.

Sarah fought hard for her life, was in critical condition for weeks and suffered from numerous infections. But her determination and willpower in the fight triumphed, and after more than 100 days, she was finally released from the hospital.

After an uneventful pregnancy, Csenge was born. After giving birth, the family noticed that parts of Csenge's body were starting to turn blue. The parents knew that something was wrong. Csenge was transferred to the Heim Pál Children's Hospital, where her circulation collapsed. The little girl was transferred to the Gottsegen György National Cardiovascular Institute, where she underwent immediate life-saving surgery for 12 hours! (Complex Pulmonary Vein Transposition). The surgery was successful, but after the prolonged medical intervention, her little body was put under a great strain and her condition remained critical! Kidney failure, mechanical ventilation! It was a very long and stressful period in the family's life. After 3 months, they were able to go home from the hospital with regular medication.

Levente is an extremely persistent and determined 13-year-old boy who struggles every day to overcome the difficulties he faced early in his life and become a successful athlete. Although he was born healthy, he suffered a central nervous system injury and moderate hearing loss after being given an incorrect course of antibiotics. These two factors have had a significant impact on Levente's movement and daily life.

Gergő was born completely healthy at the 40th week of pregnancy, after an uneventful pregnancy. In the initial period, there were no abnormalities, but later the health visitor noticed that there was a delay in his motor development. Despite this, the doctors declared him healthy until he was 17 months old, giving the family a wrong diagnosis.
However, the parents were not comfortable with the uncertainty, so they requested a full examination. The examinations revealed that Gergő may have suffered from a lack of oxygen at birth, which caused ventricular dilation. As a result, a shunt had to be implanted.

Marci developed similarly to his peers until he was 15 months old. He was already standing and walking independently at the age of 10 months. Then he received a vaccination, after which he started walking on his toes 3 weeks later, and within a few days he lost his ability to walk and at the same time his balance.
Their neurologist at the time diagnosed him with cerebral palsy. They sent Marc for an MRI, which showed signs of oxygen deprivation. This gave the neurologist an explanation for his suspicion.
In Marcin, the vaccination activated a little-known genetic disorder called Aicardi-Goutieres 7 syndrome. Marcell is currently participating in the first drug study in Austria, which his parents learned about through an American group.

Zselyke's life presented her family with unique challenges when she was just 3 months old, when they started attending a developmental neurological clinic. Despite her motor organ problems and microcephaly, Zselyke works real miracles every day. Although she started crawling, climbing, sitting up and walking later, now, at 3 years old, she struggles with speech and movement, but with the help of the early developer, she is trying to catch up.

Márk was born on December 11, 2014, 8 months premature, and his life journey began with a quick home birth. The pregnancy and the first year passed without any problems, but over time, worrying changes began to appear. From the age of one, Márk's development slowed down, and a neurologist diagnosed him with hypoxia and developmental disorders.

Máté is a true little hero, born healthy and happy in April 2007. His first years of life were fine, but in 2021 his mother noticed that Máté's spine was curved. During post-COVID tests, a 20 cm long spinal cord tumor was discovered, which presented him and his family with serious challenges.
He underwent surgery in Szeged in April 2022. The 12-hour surgery was followed by three weeks of intensive care, and Máté was able to leave the Szeged New Clinic in June. His recovery continued at Bethesda Children's Hospital until October 2022, when he was transferred to OORI in Budakeszi to continue his rehabilitation.

Emma Hegedűs is a real little smiling Love Ball who will be 3 years old in May. She came into the world 3 months earlier than expected, weighing 800 grams, so that she could see her loving parents and the beauty of the world.
However, the early arrival came at a cost: he developed a stroke and, as a result, hydrocephalus, which required a shunt. Over the course of 1.5 years, his brain was operated on eight times due to shunt problems.

Leopold was born prematurely in 2019. For a long time, it was not known why he was not developing like a normal child, until he was diagnosed with Prader-Willi syndrome at the age of three. This is a rare genetic disease that causes a lack of feeling full, so Leopold is always hungry. The disease has many other symptoms, so his parents need to take extra care of him.

On May 28, 2021, Evelin (then 16 years old) was in a car accident. While sitting in the back seat of the car, a car traveling at high speed crashed into them from the side, Evelin was thrown out of the car. She fell onto the concrete and suffered a very serious head injury. That night in the hospital, the doctors said that she would not survive. Then the parents had to prepare for the farewell. Miraculously, Evelin survived the night. After months of struggle, they were able to stabilize her condition. Evelin was in a coma for 4 months

Flóra was born with bilateral clubfoot in 2013. After endless treatments and persistent research, she was diagnosed with the rare genetic disorder Charcot-Marie-Tooth type 2C, which causes her to use a wheelchair. She attends after-school development sessions 3-4 times a week.

Áron is a wonderful, always smiling little boy whose life has been full of challenges since the moment he was born. He was deprived of oxygen at birth, and as a result, he was diagnosed with cerebral palsy and epilepsy. Although these conditions pose significant obstacles for him, Áron works with great willpower and perseverance to improve day by day.

Norbi is 13 years old and has been diagnosed with autism and ADHD. His days are particularly demanding, but that doesn't stop them from giving him everything he needs. Norbi takes medication for his hyperactivity so that he can concentrate and pay attention better at school. Learning at school is not an easy task for him, so they help him a lot at home.

István is 8 years old, and we have been attending development programs since he was 4 months old. He suffered from oxygen deprivation at birth, which affected his nervous system and movement. He is currently in first grade. Since we were looking for a small class in Budapest, we managed to find a school for him in Zugló. Egymik rejected him in several places, so we ended up attending a school where we have to pay a monthly foundation contribution of 35 thousand forints.

Our 3.5-year-old son Benji was diagnosed with Duchenne muscular dystrophy at six months old. As parents, we naturally try to do everything we can to somehow provide him with the best quality of life possible. There are several experimental gene therapy treatments for this disease in progress, and there is one (Elevidys) that is already licensed and available in a few countries. However, its price starts at 2.9 million US dollars.

Gergő was born on June 4, 2020 in Szeged. At the age of 4 months, he was diagnosed with Duchenne Muscular Dystrophy (DMD), a disease that causes progressive muscle wasting. At that time, there was no cure, but in 2023, Elevidys gene therapy was approved, so we started the collection to save our little boy's life.

Elizabeth was born in 2023 as a completely healthy baby. However, in the 90th minute of the golden hour, she suddenly stopped breathing. Her parents immediately notified the nurse, who immediately took her away and began resuscitation. The first attempt was unsuccessful, only the second time, with mechanical assistance, managed to save her life. Unfortunately, by then she had developed a severe oxygen deficiency, so she was transferred to Semmelweis University that same day, where she was hibernated for 72 hours. Despite all this, the doctors determined that approximately 60% of her brain was damaged.

Alex was born at 39 weeks of gestation, completely healthy. During the tests, it was revealed that one of the horns of the ventricle was wider than the others, but the doctors reassured the mother and grandmother that this would completely regress by the time he was 1 month old.

Attila was born at 25 weeks due to gestational toxemia, weighing 54 grams. During his birth, it was questionable whether he would survive the cesarean section. Attila wanted to live and fought!

He spent months in an incubator, I cried a lot because I felt sorry for him. The PIC nurses always said: mom, don't cry, the child was born alive, he wants to live, there's no need to feel sorry for him.

Hanna is a smiling, cheerful seven-year-old girl. However, behind her smile lies a struggle that rightfully places her among the greatest warriors. This fight is not for a title or a cup, but
for his life.

Villő was born a perfect, beautiful, completely healthy little girl. She developed completely healthy, according to her age. Her mother had all the happiness she could wish for. During her first sleepover in kindergarten, she had an epileptic seizure. Neurology, medications, tests, weeks spent in the hospital, alternative therapies, and little Villő's condition not only did not improve, but it got worse and worse.

Véda was born at 36 weeks by emergency cesarean section, due to undetected toxemia of pregnancy. She suffered from a lack of oxygen in the womb, and unfortunately suffered a brain hemorrhage on the 6th day after birth.

Tomi was born in 2016. Soon after his birth, it was discovered that he had a serious heart defect and was suspected of having Down syndrome. When genetic testing confirmed the diagnosis of Down syndrome, his biological parents decided they could not raise him.

Attila was born completely healthy. At the age of 6 months, his mother indicated to the health visitor and the pediatrician that Attila was lagging behind compared to his peers. He did not lift his head, did not push himself out or turn around, he just lay there. The tests began - skull MRI, audiological examination, genetics, ophthalmology, hearing test,) all the results were perfect, yet they did not know what could be wrong with the little children. The result was a neurological examination, where they received the diagnosis: Epilepsy and Ataxic Cerebral Palsy, which affected the speech and movement center to such an extent that Attila was unable to walk and communicated by pointing.

After winning the football championship, on a summer day in 2021, 17-year-old Áron Thuróczy rushed to the Körös beach with his friends to celebrate. Áron jumped into the water, but his head hit an underwater object, which immediately paralyzed him. After a long treatment, Áron is in better physical condition and is doing everything he can to make his recovery as successful as possible.

Jasmine often had pneumonia and was suffering from pain in her right lung. In 2013, they went for an X-ray, where a walnut-sized shadow was visible on the lower lobe of her lung, which grew to the size of a palm in a short time. The usual examinations began. For a long time, the doctors did not know what it really was. On 05/09/2013, it was time for surgery. Jasmine was only 10 years old when the lower 1/3 of her right lung lobe was removed during the operation.

Kitti was 3 months old when her breathing monitor signaled, fortunately there was no respiratory arrest. Her parents took her to the hospital, where the tests began. After the results of the tests, which were determined by the MRI of the skull, Kitti had a brain deficit, which means that the cerebellum is atrophying and most of the white matter has died. These abnormalities affect her movement and sense of balance. Kitti has been attending developmental classes since she was 3.5 months old.

Marcell and Peter-William are two very wonderful and talented children. Both children are visually impaired, hearing impaired and autistic.
Marcell is 24 years old and spends his weekdays at Sarepta Home - which was recommended by the experts - because he is in a community and receives much more stimulation than if he were at home. Such young people with moderate intellectual disabilities, when they come home after school, slowly deteriorate mentally, and the family wanted to avoid this. Fortunately, he really likes indoor life, but at the same time he also requires home care. Therefore, he spends the weekends, from Friday to Sunday evening, with his family.

Noel is a beautiful 3.5 year old boy. He was a much-anticipated child and his mother couldn't wait to hold her unborn child in her arms. His mother, who was born by caesarean section, was put under anesthesia. When he woke up from the anesthesia, doctors and nurses were standing by his bedside.

Natália was born completely healthy, but when she was one and a half years old, her parents noticed that their daughter's movements were unsteady. A series of tests began, which revealed that she suffers from mucolipidosis type IV, a genetic, incurable disease that leaves the five-year-old girl unable to walk or talk.

Dávid was born a premature baby boy. At birth, he suffered from intrauterine oxygen deprivation, followed by a grade 2 cerebral hemorrhage. His physical development as an infant was weaker than average. In 2022, they managed to move to Hungary from Ukraine on a voluntary basis for the sake of their child, as Dávid needed developments that they did not have the opportunity to have in Ukraine.

Máté was born with a very rare genetic disorder that affects the muscles of the body. On the 5th day of his birth, his parents noticed that he could not hold his tiny head properly. They visited their family doctor with their observations, who reassured them that Máté would only develop in a few days. Unfortunately, this was not the case. My 4-month-old had already become so visible that his neck was really weak and he was lagging behind in large movements. He could not lift his head. Then, on medical advice, we were admitted to a developmental center. He was taken to private therapies with him: Dévény and Tsmt exercises. Unfortunately, it did not bring much success to the family's life. At 11 months old, he was seen by a neurologist specializing in muscle research, who diagnosed mild neck and shoulder girdle hypotonia. His parents were not reassured by the diagnosis and a full neurological examination was initiated in Hungary, in addition to therapies. The neurological examination did not give an accurate diagnosis of little Máté's condition.

Melinda was a breech baby and was born naturally at 33 weeks. The doctors forced a natural birth instead of a cesarean section. As a result, Melinda suffered from a lack of oxygen, which led to a stroke. She had to be resuscitated after birth.
The little girl was released home after 3 weeks, but the parents were not informed about their child's illness. At the age of 1, they took Melinda for a check-up, when they learned that their daughter suffered from a neurological and physical disability. Their daughter will neither be able to speak nor walk. The family was sent for genetic testing, which came back negative.

Lacika is a 6-year-old, smiling, cheerful little boy who came into the world on a sunny August day. But Lacika's story is unique and funny, as he has been battling an intrauterine viral infection, cytomegalovirus, since birth. He was born at Uzsoki Hospital, and from the very beginning it was indicated that his muscle tone was tight and that he would need physical therapy in the future. Over the past 6 years, Lacika and his family have faced many challenges. The little boy's life is full of gymnastics, therapy, and struggles. Cytomegalovirus caused a serious movement disorder, and many therapies and development methods have become a daily routine in Lacika's life.

Kiara's struggle began in her mother's womb. At the 18-week ultrasound, she was diagnosed with aortic stenosis. After the diagnosis, they were taken to Budapest's Szent János Hospital, where the cardiologist professor told the parents what to expect after the examination. – 50-50%, that there could be something wrong with her, but it will only be revealed at birth.
The tests continued with a placental biopsy to screen for the most serious genetic diseases. Mónika was given great news after the test: she was carrying a completely healthy baby girl. Kiara was born by scheduled cesarean section and her heart was working properly. After the tests, they were discharged from the hospital and they could finally go home. The baby girl developed completely normally until she was 3 months old.

Linett was born by emergency cesarean section at 29 weeks along with her siblings.
The 3 children developed beautifully, everything seemed to be fine. They were 6 months old when her parents noticed that Linett was lagging behind in terms of movement compared to her siblings. Linett cried a lot and was often inconsolable! The doctors reassured us that there was nothing wrong, but our mother's intuition said otherwise, so we visited our first Dévényes and the early development house, unfortunately we did not start on the path of development, so we visited our current Dévényes at the age of 1, who has been a part of our lives ever since and we are very grateful to Him!

His needs and the way he is treated are both special. Since childhood, he has been continuously ensured that he can live a life as free from obstacles as possible, in accordance with his condition. This fact requires both human and financial sacrifices on the part of the family: his mother can only work part-time, and the creation of Levente's environment requires specific, special solutions, which are sometimes difficult to finance financially - especially in the case of an older son with severe adolescent autism, as a single mother, raising another child who is also a teenager.

Csaba has been living with severe mobility impairment since birth due to a medical error. Labor began in the 33rd week of pregnancy, and the mother's doctor thought it best to delay it with a new type of infusion at the time. The delay was so successful that the doctors finally induced labor in the 41st week.

Kata was born completely healthy on September 6, 2002. Her illness began with an epileptic seizure. She was diagnosed with encephalitis in the hospital.
He got better and better, and after 2 weeks they took him off the diuretic medication and his left side became paralyzed, then it turned out that he had an overproduction of cerebrospinal fluid.
The family was living in Jász-Nagykun Szolnok County when the overproduction of cerebrospinal fluid was discovered. They were taken to the Budapest National Neurosurgery Hospital, where Kata underwent endoscopic brain surgery.

Wencel is a cheerful, always smiling little 1.5-year-old guy, about whom no one in the world would say that he has any health problems. Unfortunately, this is only an appearance for now. Wencel came into the world with a serious complex heart defect, transposition of the great arteries, that was not discovered during pregnancy. The parents expected a completely healthy baby, as his condition in the womb showed no signs of any problems.

Sófi was born prematurely at 27 weeks, weighing 990 grams. She was not breathing spontaneously at birth and suffered a stroke shortly after. Due to her respiratory failure, she was on mechanical ventilation for a long time. As a result of the stroke, the cerebrospinal fluid could not drain properly, so a shunt was implanted.

Gergő arrived as the second child after a calm, problem-free pregnancy. He was only able to spend 6 weeks at home after his birth. His mother noticed that he was weaker and much more sleepy than his brother. He was eating less and less and was swallowing what he had.

David is a brave little boy who has had a special life since birth. He was born healthy, but when he was one month old, a febrile seizure changed his life. Medical tests, such as CT and MRI, revealed dark areas on the left side of his brain, indicating brain trauma. As a result, his right-side muscles are weaker and he suffers from limited mobility, having difficulty controlling his hands and legs, especially on the right side.

Botond is just over three years old. He is battling a serious leukemia. At first, they couldn't determine what was wrong with him, but fortunately, pediatrician Dr. Hargel Ahmad of Elek recognized the disease in time and helped the family start the boy's five-year chemotherapy treatment in Szeged.

Bence was born prematurely at six months, with an extremely low birth weight. He spent six months in the Debrecen clinic. During those months, he was in crisis situations several times, fighting for his life.
Doctors told his parents that the boy would only live until he was 5 years old at most.
He was born blind in both eyes. During his predicted 5 years, Bence suffered several strokes, had his colon removed, and developed epilepsy.

Zsuzsanna Holli's mother experienced a parent's worst nightmare before the birth of her second daughter. Her first-born daughter was diagnosed with an incurable disease and had to be placed in a home where she could be provided with the conditions, care, and medical treatment appropriate to her condition. Zsuzsa was completely devastated, but fate placed Gergő on her side, who accompanied her throughout this period.

Life has been a struggle for Hanna, now 7, since birth. The little girl suffered from renal vein thrombosis in the womb, and 3 strokes at birth, as well as cerebral palsy and epilepsy. Her mother was told that her child would vegetate like a houseplant. The doctors practically gave up on her, but her mother and the family did not give up.

He was born prematurely at 34 weeks of gestation by cesarean section. From the very beginning, he struggled with many difficulties (feeding, movement, etc.), and because of these, he underwent various tests in several hospitals until he was 4 months old. Within the framework of such tests, he was referred to the University of Pécs for genetic testing, where he received the diagnosis of his disease after waiting for almost 3 years. He lives with 2 congenital, rare genetic diseases, which are accompanied by microcephaly (a brain developmental disorder - affecting speech, vision, and the movement center), metabolic and hormonal disorders.

Pamela finished chemotherapy a year ago. Since then, she has been trying to
to live the same life as healthy children, to go back to kindergarten,
from which he graduated and will be going to school in September.

Fanni was born healthy, everything was fine until she was 5 months old. She was diagnosed with epilepsy. She was in intensive care a lot because of the seizures. "Maternal intuition" They put her on medication, but the child still had seizures and often required oxygen, they didn't change her medication. And I told the neurologist that this couldn't go on like this, that the child was always having seizures, then the doctor said that we should go to Bethesda Children's Hospital. Which was the best decision.

Levente was born with a very rare genetic disease (Walker Wartburg syndrome) which is a disorder affecting the brain, eyes and muscles. This disease cannot be cured. His condition can worsen at any time because he has excessive neurological incomprehension and epilepsy. He cannot speak or walk independently yet, he requires 24-hour supervision. Mentally he is at the level of a one-year-old.
At birth, doctors predicted he would live two years.

Lénárd had to deal with oxygen deprivation in the womb, and was born at 35 weeks. He had to be resuscitated immediately, was kept on a ventilator for 16 days, and required respiratory support for another 11 days. His infantile reflexes had not yet developed, so he was fed through a nasogastric tube until he was 5 months old, after which he was placed in a gastrostomy tube at 5 months old.

Rita was born prematurely. No abnormalities were noticed during pregnancy, but after she was born they were faced with the fact that something was wrong. She may have been injured by some external influence in the early stages of pregnancy, which made her multiple disabled. She needs 24-hour supervision, is unable to take care of herself, and has epilepsy. We have been taking her to a day care center since she was 1 year old, where she participates in development and therapy. She is already 30 years old, and her family has raised her with great love and care since she was born.

Levente was born on September 1, 2016. From a young age, he had difficulty connecting with the outside world and could only express his extreme emotions. He was asked for help several times because of his behavioral patterns, but due to his age, he was never examined further.

Marcell was born naturally at 37 weeks, with an Apgar score of 10/10.
After his birth, he was immediately transferred to the neonatal unit because his breathing was very rapid.
At the age of 16 months, Marcin had an epileptic seizure, which was followed by several in the hospital. He received medication, but unfortunately he was unable to completely stop the seizures, and he often lost consciousness.

It was an incomparable, wonderful moment when we could hold our healthy newborn baby girl in our arms. Our happiness was boundless that our family was complete with the arrival of Zoé. However, life had a difficult path for her. Eleven months. That was all we had from our carefree, joyful childhood.

Gergő was born completely healthy after an uneventful pregnancy at 40 weeks. It was only later that they noticed that there was something wrong with Gergő. The health visitor indicated that the little boy had a delay in motor development. Despite this, the doctors maintained the incorrect healthy diagnosis until he was 17 months old. The parents were not left alone by the matter, so they requested a full examination for Gergő. After the examinations, it turned out that Gergő may have suffered from a lack of oxygen at birth, which caused ventricular dilatation and required the implantation of a shunt.

Until he was 1.5 years old, Benben was a perfectly healthy, smart, intelligent, cheerful, mischievous little boy who walked skillfully, "spoke" in 3 languages, and happily helped his mother with everyday tasks. However, one Saturday night, the family experienced every parent's nightmare: Benben swallowed a peanut kernel and choked.

On 19.01.2006, Bence was born as the 4th child. At the age of 2 months, he was admitted to the hospital due to growth disorders, where after the examination he was diagnosed with infantile cerebral palsy. The special institutions did not accept him, so he learned to walk at home. Over time, the increasingly difficult walking was associated with pain.

The Csapó family is raising 5 children, 3 of whom have autism.
Simon is 10 years old, Sára is 13 years old and Árpád is 21 years old. They have been carrying this condition, this “disease”, with them since childhood. At first glance, it is not obvious that they are living with autism. But you soon realize that everything is not right. The children need help 24 hours a day.

Anna was born naturally as her first child, exactly at the 40th week, to the day. She had a beautiful, undisturbed birth. There was great joy in the family. At 6 weeks, during the mandatory hip and skull screening, the parents were informed that they saw ventricular dilation on the ultrasound. An MRI scan was recommended for a more accurate diagnosis.
Unfortunately, the suggestion that several areas of the brain developed differently or incompletely was confirmed: the main diagnosis was a rare brain developmental disorder, polymicrogyria. This lesion covers almost the entire brain, and the corpus callosum, the nerve fiber connecting the two cerebral hemispheres, was partially developed, but the MRI findings also showed Septum Pellucidum agenesis and hippocampus malrotation.

"We started life with a big disadvantage, but nothing is impossible for us!" Alíz is almost three years old, but her life has been filled with struggles and difficulties. Doctors said she would never have contact with the outside world, she might not even be able to hold her head up, and she would never be able to smile.

Ádin was born completely healthy after a problematic pregnancy. He swept everyone off their feet because he was a beautiful, blue-eyed, blonde, long-haired baby.
Ádin developed completely healthily as a happy, cheerful toddler. He started nursery school at the age of 1 and loves children.

My little girl, Laura, was born at term after an uneventful pregnancy. In the first few months, her development was as expected and there were no signs of concern. However, by the time she was three or four months old, it became apparent that she was not developing as well as her peers of a similar age.

Vitéz lives with autism and severe intellectual disability. His siblings, ten-year-old Gellért, who struggles with ADHD, and 11-year-old Remény, who is always there to help him, do their best to support and love each other.

My little son Abel will be five years old in January. Abel has Sturge-Weber syndrome (not hereditary) and Antithrombi. He is 3 months old.
At the age of 12, he had eye surgery for glaucoma, and 12 hours later he had epileptic seizures.
They checked in on him, he had a stroke.

Both of my children are affected by autism, and that is also a neurological problem.
My wife is home alone with the boys, and I can only do it in 4 hours.
to work.

Kamilla was born healthy in 2011. Around the age of 1.5, it began to become apparent that
He develops more slowly than his peers. He was diagnosed with autism at the age of 2.5 in Pécs.
chromosomal abnormality and it was determined that Kamilla had Dett syndrome. At the age of three, there was a major relapse in her condition.

My name is Anita Tóth, I moved to Budapest from a small town in Szabolcs, Pap, for work opportunities. My little girl, Olívia Tóth, was born on January 24, 2023, but she had serious health problems at birth. It turned out that she suffers from a rare genetic disease, Vein of Galen malformation, which caused circulatory failure, heart failure and stroke. She underwent several surgeries and was in danger of dying for many months.

Maja and Márió are brothers and sisters who need support.
Maja, only three years old, is battling ganglion neuroblastoma, a rare and serious cancer. The treatments – surgeries, chemotherapy – take a toll on the little girl and her family, but they are driven by the hope of recovery. All support is essential to ensure the best medical care.

Sizdónia was born prematurely on June 12, 2008, at 27 weeks, with a lack of oxygen. The diagnosis is infantile paralysis, which severely affects his psychomotor development. In addition, he still struggles with locomotor problems, psychological and learning disorders.

Ákos was born on September 5, 2021, at 31 weeks, prematurely. This is the first time in his life
his moments were also filled with struggle. On the second day, he suffered a severe stroke, which began a long period of rehabilitation. Margit Hospital newborn for three weeks
we were with him in his ward before we could take him home, and the series of intensive therapy treatments that have continued ever since began.

Noel is a beautiful 3.5 year old boy. He was a much-anticipated child and his mother couldn't wait to hold her unborn child in her arms. His mother, who was born by caesarean section, was put under anesthesia. When he woke up from the anesthesia, doctors and nurses were standing by his bedside.

Csaba has been living with severe mobility impairment since birth due to a medical error. Labor began in the 33rd week of pregnancy, and the mother's doctor thought it best to delay it with a new type of infusion at the time. The delay was so successful that the doctors finally induced labor in the 41st week.

The Rézműves family lives with three sick boys in a small village in Szabolcs County, where despite the difficulties, the family sticks together and raises the boys with great love. Dominik, Leonárd and Mikike were apparently born healthy, although the cataract was visible in the eyes of the latter boy from the very first moment.

Vivien is a special 13-year-old girl who has faced serious challenges throughout her life. She was born from a high-risk pregnancy, with a lack of oxygen, which caused severe epilepsy of unknown origin at the age of 1 month. The family is doing everything they can to improve Vivien's health, but unfortunately she requires constant medication, which must be adjusted regularly to try to make her seizure-free.

Lencsi was born in 2016 as a completely healthy baby. His motor development had always been slower, but at the age of one and a half his development stopped and reversed. Genetic testing showed he had SMA type 2.